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On the situation of Multiple Sclerosis Patients in Baden-Wuerttemberg

Version
1.0.0
Resource Type
Dataset
Creator
  • Schleth, Uwe (Institut für Soziologie, Universität Heidelberg)
Publication Date
1983
Contributor
  • Institut fuer Soziologie, Universitaet Heidelberg (Data Collector)
Language
German
Classification
  • ZA:
    • Medicine
Description
  • Abstract

    The actual situation of multiple sclerosis patients in Baden-Wuerttemberg; their symptoms and the course of the illness. Topics: 1. Information on the person: marital status before start of illness and currently; change of marital status due to illness; description of household; city type; frequency of moving since becoming ill; desire to move; employment before start of illness and currently; change of occupation due to illness; type of health disturbances primarily causing change of occupation; sources of income; educational goals; importance of areas of life; fair share of gross national product; religiousness. 2. Symptoms and the course of the illness: time of first signs of illness; conduct of the doctor at diagnosis; self-assessment of extent to which informed about the illness at diagnosis; desire for detailed discussion and advice about the illness; course of the illness in the last two years; type of need and aids used in walking; same illness among relatives; type and extent of disabilities from multiple sclerosis. 3. General care and support: judgement on understanding for the illness among family and friends; help needed and received for every-day activities and persons helping with this; general satisfaction with help provided. 4. Medical support and other technical care: medical care received and treatments as well as designation of the specialists taken advantage of for this; most important and most helpful treatment measures; general satisfaction with medical support. 5. Attitude to housing and nursing homes as well as particular facilities for MS-patients: judgement on the structuring of one´s own residence appropriate for the illness; preferred accomodation in one´s own family or in special nursing care homes; desired housing opportunity for a short stay outside of one´s own residence; importance of such a short stay; adequate meaningful activities; extent to which informed about the illness and information problems (scale); judgement on the importance of consultation possibilities and preferred topics for a consultation conversation; preferred public measures to improve the situation of MS-patients. 6. Human problems and difficulties: detailed recording of the psychological problems in connection with restrictions arising from the illness; most difficult family problems in connection with the illness; socially desired response behavior (short scale); most important psychological help to accept one´s own illness; advice to other MS-patients to come to grips with their situation. 7. Miscellaneous: filling out the questionnaire oneself; degree of relationship to the person helping with filling it out; physical effort in filling out the questionnaire; self-assessment of willingness to cooperate. Women were also asked: influence of a pregnancy on the course of the illness.
Temporal Coverage
  • 1981-08 / 1982-01
Geographic Coverage
  • Baden-Württemberg (DE-BW)
Sampled Universe
Persons sick with multiple sclerosis (in Baden-Wuerttemberg), to the extent they were listed in the member card file of AMSEL (Aktion Multiple Sklerose Erkrankter, Landesverband Baden-Wuerttemberg) {Action Multiple Sclerosis Patients, state association Baden-Wuerttemberg} or the German Paritaetischer Wohlfahrtsverband {charity organization}.
Sampling
Census
Collection Mode
  • Mail survey
Data and File Information
  • Unit Type: Individual
    Number of Units: 1376
    Number of Variables: 311
Availability
Delivery
C - Data and documents are only released for academic research and teaching after the data depositor’s written authorization. For this purpose the Data Archive obtains a written permission with specification of the user and the analysis intention.
Rights
All metadata from GESIS DBK are available free of restriction under the Creative Commons CC0 1.0 Universal Public Domain Dedication. However, GESIS requests that you actively acknowledge and give attribution to all metadata sources, such as the data providers and any data aggregators, including GESIS. For further information see https://dbk.gesis.org/dbksearch/guidelines.asp
Alternative Identifiers
  • ZA1255 (Type: ZA-No.)
Publications
  • Schleth, Uwe: Zur Situation der von Multipler Sklerose Betroffenen in Baden-Württemberg: Ergebnisse einer schriftlichen Befragung von 1376 MS-Patienten im Herbst 1981 (Tabellenband). Heidelberg: Forschungsbericht o. J.

Update Metadata: 2017-12-28 | Issue Number: 75 | Registration Date: 2010-07-22

Schleth, Uwe (1983): Zur Situation der Multiple-Sklerose-Kranken in Baden-Württemberg. Version: 1.0.0. GESIS Datenarchiv. Dataset. https://doi.org/10.4232/1.1255