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Springfield [Massachusetts] Study of Populations with Disabilities, 1993-1997

Version
v0
Resource Type
Dataset : survey data
Creator
  • Allen, Susan M. (Brown University. Center for Gerontology and Health Care Research)
  • Mor, Vincent (Brown University. Center for Gerontology and Health Care Research)
Other Title
  • Archival Version (Subtitle)
Publication Date
2000-02-21
Funding Reference
  • Robert Wood Johnson Foundation
Language
English
Free Keywords
activities of daily living; assisted living; assistive devices; disabilities; disabled persons; emergency services; health care access; health care services; hospitalization; needs assessment
Description
  • Abstract

    This two-wave longitudinal survey of persons with disabilities in Springfield, Massachusetts, had four research objectives: (1) to determine levels of formal and informal service use among people with disabilities in Springfield, (2) to determine the prevalence and consequences of unmet needs for assistance with activities of daily living (ADLs) and instrumental activities of daily living (IADLs), (3) to test the hypothesis that residents reporting unmet needs for assistance with daily living activities at baseline would have higher levels of emergency room use and hospitalization over the follow-up period than respondents not reporting such needs, and (4) to assess respondents' satisfaction with access to and quality of their health care and health care providers. Conducted in 1993-1994 and 1996-1997, the survey gathered information on health, health service utilization, satisfaction with health services, assistance with ADLs (eating, dressing, bathing, toileting, transferring in and out of bed/chair, and moving around indoors) and IADLs (preparing meals, shopping for groceries and household supplies, housekeeping, transportation, and financial management), social and physical activity, social support, health care coverage, and sociodemographic characteristics such as income, year of birth, marital status, race, Hispanic origin, religion, education, and employment.
  • Table of Contents

    Datasets:

    • DS0: Study-Level Files
    • DS1: Baseline Survey Data
    • DS2: Follow-Up Survey Data
    • DS3: Case Disposition Data
Geographic Coverage
  • Massachusetts
  • Springfield
  • United States
Sampled Universe
Persons with disabilities 18 years of age and older residing in Springfield, Massachusetts, in 1993-1994.
Sampling
Respondents to the baseline survey conducted in 1993-1994 were selected through random-digit dialing and network sampling. The sample was stratified by age with approximately half of the respondents aged 18-64 and the remaining half aged 65 and older. Of the 632 respondents interviewed for the baseline survey, 592 gave permission to be recontacted for the follow-up survey in 1996-1997. However, the follow-up survey obtained only 424 interviews, of which 101 were conducted with proxies of baseline participants who had died or were living in nursing homes at the time of the follow-up. Sixty-three baseline respondents who gave permission to be recontacted (or their proxies) refused to participate in the follow-up survey, and 105 cases were lost to follow-up despite aggressive efforts to find them in the field.
Note
2006-03-30 File CB2623AP.ALL.PDF was removed from any previous datasets and flagged as a study-level file, so that it will accompany all downloads. Funding insitution(s): Robert Wood Johnson Foundation (028141).
Availability
Delivery
One or more files in this study are not available for download due to special restrictions; consult the study documentation to learn more on how to obtain the data.
Alternative Identifiers
  • 2623 (Type: ICPSR Study Number)
Relations
  • Is previous version of
    DOI: 10.3886/ICPSR02623.v1
Publications
  • Allen, Susan M., Mor, Vincent. The prevalence and consequences of unmet need: Contrasts between older and younger adults with disability. Medical Care.35, (11), 1132-1148.1997.
    • ID: 10.1097/00005650-199711000-00005 (DOI)
  • Allen, Susan M., Mor, Vincent. Unmet need in the community: The Springfield Study. To Improve Health and Health Care: The Robert Wood Johnson Foundation Anthology.San Francisco: Jossey Bass. 1997.

Update Metadata: 2015-08-05 | Issue Number: 6 | Registration Date: 2015-06-15

Allen, Susan M.; Mor, Vincent (2000): Springfield [Massachusetts] Study of Populations with Disabilities, 1993-1997. Archival Version. Version: v0. ICPSR - Interuniversity Consortium for Political and Social Research. Dataset. https://doi.org/10.3886/ICPSR02623