National Home and Hospice Care Survey, 1996

Resource Type
Dataset : survey data
  • United States Department of Health and Human Services. National Center for Health Statistics
Other Title
  • Archival Version (Subtitle)
Collective Title
  • National Home and Hospice Care Survey Series
Publication Date
Free Keywords
assisted living; facilities; home care; home care agencies; hospices; long term care; patients; personnel; service providers
  • Abstract

    The National Home and Hospice Care Survey (NHHCS) for 1996 is the fourth survey of home health agencies and hospices and their current patients and discharges. These surveys were designed to provide information for those who establish standards for, plan, provide, and assess long-term care services, both in the home and in inpatient settings. Data on agency characteristics were obtained through personal interviews with the agency administrators and include the number of home health and hospice patients served in the last 12 months, type of facility ownership (i.e., profit, nonprofit, government, other), Medicare and Medicaid certification, number and type of staff personnel, and the hours they worked. Data on a sample of patients currently receiving home health and hospice care as well as a sample of discharges were obtained by interviewing staff persons most familiar with the care provided to these patients. Respondents were requested to refer to medical or other records whenever necessary. No patient was interviewed directly. Information for patients currently receiving services and discharged patients includes services provided and provider type, type of residence, referral source, medical diagnosis, type of care (home health or hospice), type of aids used (eyeglasses, dentures, walker, cane, oxygen, hospital bed, etc.), daily living activities that required assistance, and billing charges and expected payment source(s). The discharge diagnosis for discharged patients was also recorded. Demographic variables for both types of patients include sex, age, race, Hispanic origin, and marital status.
  • Table of Contents


    • DS0: Study-Level Files
    • DS1: Facility Questionnaire
    • DS2: Current Patient Questionnaire
    • DS3: Discharged Patient Questionnaire
Temporal Coverage
  • Time period: 1996
  • 1996-08 / 1996-12
    Collection date: 1996-08--1996-12
Geographic Coverage
  • United States
Sampled Universe
All home health care agencies and hospices identified in the 1991 National Health Provider Inventory (NHPI) and all agencies open for business between June 30, 1992, and December 31, 1993, as identified through the Agency Reporting System.
The sample design for the 1996 NHHCS was a stratified three-stage probability design. Primary sampling units (PSUs) were selected at the first stage, agencies at the second stage, and current residents and discharges at the third stage.
Collection Mode
  • (1) Per agreement with NCHS, ICPSR distributes the data files and text of the technical documentation for this collection as prepared by NCHS. (2) The codebook and data collection instruments are provided as a Portable Documentation Format (PDF) file. The PDF file format was developed by Adobe Systems Incorporated and can be accessed using the Adobe Acrobat Reader. Information on how to obtain a copy of the Acrobat Reader is provided through the ICPSR Website on the Internet.

2006-01-18 File CB2707.ALL.PDF was removed from any previous datasets and flagged as a study-level file, so that it will accompany all downloads.
This version of the study is no longer available on the web. If you need to acquire this version of the data, you have to contact ICPSR User Support (
Alternative Identifiers
  • 2707 (Type: ICPSR Study Number)
  • Is previous version of
    DOI: 10.3886/ICPSR02707.v1
  • Haupt, Barbara J., Jones, Adrienne. The National Home and Hospice Care Survey: 1996 Summary. Vital and Health Statistics, Series 13: Data From the National Health Survey.141, Hyattsville, MD: National Center for Health Statistics. 1999.
    • ID: (URL)
  • Mullner, R.M., Jewell, M.A., Mease, M.A.. Monitoring changes in home health care: a comparison of two national surveys. Journal of Medical Systems.23, (1), 21-26.1999.
    • ID: 10.1023/A:1020815410339 (DOI)
  • Kassner, Enid, Bectel, Robert W.. Midlife and Older Americans with Disabilities: Who Gets Help? A Chartbook. Research Report.Washington, DC: AARP, Public Policy Institute. 1998.
    • ID: (URL)
  • Haupt, Barbara J.. Development of the National Home and Hospice Care Survey. Vital and Health Statistics, Series 1: Programs and Collection Procedures.33, National Center for Health Statistics. 1994.
  • Sirrocco, Al. Nursing homes and board and care homes: Data from the 1991 National Health Provider Inventory. Advance Data from Vital and Health Statistics.244, Hyattsville, MD: National Center for Health Statistics. 1994.
    • ID: (URL)
  • Wunderlich, Gooloo S.. Toward a National Health Care Survey: A Data System for the 21st Century. Washington, DC: National Academy Press. 1992.
  • Eklund, Darrel. The Agency Reporting System for Maintaining the National Inventory of Hospitals and Institutions. Vital and Health Statistics, Series 1: Programs and Collection Procedures.6, Hyattsville, MD: United States Department of Health and Human Services, National Center for Health Statistics. 1968.
    • ID: (URL)

Update Metadata: 2015-08-05 | Issue Number: 6 | Registration Date: 2015-06-15