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Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001

Version
v0
Resource Type
Dataset : survey data
Creator
  • Schulz, Richard, et al. (University of Pittsburgh)
Other Title
  • Archival Version (Subtitle)
Publication Date
2001-11-14
Funding Reference
  • United States Department of Health and Human Services. National Institutes of Health. National Institute on Aging
Language
English
Free Keywords
Alzheimers disease; caregiver burden; caregivers; emotional states; families; health services utilization; health status; intervention; minorities; older adults; outreach programs; psychological wellbeing; stress
Description
  • Abstract

    Resources for Enhancing Alzheimer's Caregiver Health (REACH) was established in 1995 to conduct social and behavioral research on interventions designed to enhance family caregiving, particularly in minority families, for persons with Alzheimer's Disease and related disorders. Data were collected through randomized clinical trials at six sites: University of Alabama--Birmingham, the Research and Training Institute of the Hebrew Rehabilitation Center for Aged in Boston, University of Tennessee--Memphis, University of Miami, Veterans Affairs Palo Alto Health Care System and Stanford University, and Thomas Jefferson University in Philadelphia. Interventions studied included psychoeducational support groups, behavioral skills training programs, family-based systems interventions, environmental modifications, and technological computer-based information and communication services. Although interventions varied by site, all sites collected the same data at the same time intervals. The impact of the various intervention strategies on psychological distress, health status, health practices, and health care utilization was assessed. Parts 1 through 5 contain screening data and a short mental status questionnaire. Parts 6 through 24 contain baseline data and cover activities of daily living, anxiety, and caregiver health and behaviors along with sociodemographic information. Also included are care recipient medications and sociodemographic information. Parts 25 and 26 contain tracking data and also include an examination of interventions.
  • Table of Contents

    Datasets:

    • DS0: Study-Level Files
    • DS1: Screening Log Sheet
    • DS2: Screening
    • DS3: Rescreen
    • DS4: Repeat Screen
    • DS5: Short Portable Mental Status Questionnaire
    • DS6: ADL/IADL
    • DS7: Anxiety Inventory
    • DS8: Caregiver Health and Health Behaviors
    • DS9: Core Quality Form
    • DS10: Formal Care and Services
    • DS11: Caregiver Medications
    • DS12: Caregiver Sociodemographic Information
    • DS13: Identification Number
    • DS14: Interview Time
    • DS15: Revised Memory and Behavior Checklist
    • DS16: Mini Mental State Examination
    • DS17: Positive Aspects of Caregiving
    • DS18: Religiosity
    • DS19: Care Recipient Medications
    • DS20: Care Recipient Sociodemographic Information
    • DS21: Social Activities
    • DS22: Center for Epidemiologic Studies-Depression
    • DS23: Social Support
    • DS24: Vigilance
    • DS25: Intervention Assignment
    • DS26: Off-Protocol
Temporal Coverage
  • 1996-09 / 2001-02
    Time period: 1996-09--2001-02
  • 1996-09 / 2001-02
    Collection date: 1996-09--2001-02
Geographic Coverage
  • Alabama
  • Birmingham
  • Boston
  • California
  • Florida
  • Massachusetts
  • Memphis
  • Miami
  • Palo Alto
  • Pennsylvania
  • Philadelphia
  • Tennessee
  • United States
Sampled Universe
Family caregivers living with persons with dementia for at least six months in Birmingham, AL, Boston, MA, Memphis, TN, Miami, FL, Palo Alto, CA, and Philadelphia, PA.
Sampling
Convenience sample with recruitment strategies varying at each site.
Note
2006-03-30 File CB3253.ALL.PDF was removed from any previous datasets and flagged as a study-level file, so that it will accompany all downloads.2005-11-04 On 2005-03-14 new files were added to one or more datasets. These files included additional setup files as well as one or more of the following: SAS program, SAS transport, SPSS portable, and Stata system files. The metadata record was revised 2005-11-04 to reflect these additions. Funding insitution(s): United States Department of Health and Human Services. National Institutes of Health. National Institute on Aging.
Availability
Delivery
This version of the study is no longer available on the web. If you need to acquire this version of the data, you have to contact ICPSR User Support (help@icpsr.umich.edu).
Alternative Identifiers
  • 3253 (Type: ICPSR Study Number)
Relations
  • Is previous version of
    DOI: 10.3886/ICPSR03253.v1
Publications
  • Thorpe, Joshua M., Thorpe, Carolyn T., Kennelty, Korey A., Gellad, Walid F., Schulz, Richard. The impact of family caregivers on potentially inappropriate medication use in noninstitutionalized older adults with dementia. Pharmacotherapy.10, (4), 230-241.2012.
    • ID: 10.1016/j.amjopharm.2012.05.001 (DOI)
  • Coon, D.W., Schulz, R., Ory, M.G.. Innovative intervention approaches for Alzheimer's Disease caregivers. Innovations in Practice and Service Delivery Across the Lifespan.New York: Oxford University Press. 1999.

Update Metadata: 2015-08-05 | Issue Number: 6 | Registration Date: 2015-06-15

Schulz, Richard, et al. (2001): Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001. Archival Version. Version: v0. ICPSR - Interuniversity Consortium for Political and Social Research. Dataset. https://doi.org/10.3886/ICPSR03253