Chronic Illness and Caregiving, 2000: [United States]
- Thamer, Mae (Johns Hopkins University. School of Public Health)
- Version 1 (Subtitle)
- Robert Wood Johnson Foundation
AbstractThe objective of this survey, which interviewed individuals from the general public, chronically ill persons, and informal caregivers, was threefold: (1) to assess public awareness of chronic care issues and the level of support for chronic care policy initiatives, (2) to examine experiences and needs of chronically ill Americans concerning health care and other assistance, and (3) to evaluate experiences and needs of informal caregivers. Questions to the general public addressed awareness of the availability of supportive and housing services for the chronically ill, knowledge about coverage for long-term care, concerns about the future of the chronic care delivery system, support for policy initiatives such as tax credits for the chronically ill and caregivers, and support for a policy that would ensure pharmaceutical coverage in Medicare. Chronically ill interviewees responded to questions about access to and experience with chronic care and other health care services, experiences with and needs for clinical services coordination, experiences with and needs for social supports and interventions, and adjustment skills and knowledge (e.g., what were their needs for learning how to live with chronic conditions). Questions for informal caregivers focused on experiences with caregiving (e.g., for whom they provided care, how many hours they devoted to caregiving per week, and living arrangements), balance between caregiving and other areas of their lives, experiences with and needs for respite care, and availability of social supports for caregivers.
Table of Contents
- DS1: Dataset
Time period: 2000
Collection date: 2000
The data map is provided by ICPSR as an ASCII text file and the codebook and frequencies are provided by ICPSR as a Portable Document Format (PDF) file.
- 3402 (Type: ICPSR Study Number)
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Update Metadata: 2015-08-05 | Issue Number: 6 | Registration Date: 2015-06-15