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National Hospice Study: Patient and Facility Data, [1980-1983]

Version
v1
Resource Type
Dataset : survey data
Creator
  • Greer, David
  • Mor, Vincent
Other Title
  • Version 1 (Subtitle)
Publication Date
1988-06-01
Funding Reference
  • United States Department of Health and Human Services. Health Care Financing Administration
  • Robert Wood Johnson Foundation
  • John A. Hartford Foundation
Language
English
Free Keywords
health care costs; hospices; patient care; patients; terminal care; terminal illnesses
Description
  • Abstract

    The purpose of the National Hospice Study was to examine the impact of hospice care on the quality of life of patients and their families and the health care cost incurred by patients. The National Hospice Study consists of two distinct, but interrelated, primary data collection components. The first relates to patient level studies of the costs incurred by patients and their families during the final phases of terminal cancer as well as the quality of life that they experienced during this period. The second component of the study relates to comparisons of the hospices that had received special demonstration funding from the Health Care Financing Adminstration for reimbursement of costs incurred by Medicare patients and those that had not. To address the issue of the desirability of reimbursing for hospice under Medicare, data from a large number of hospice and nonhospice patients were gathered. Patients were identified via the sites of care serving them, both hospice and nonhospice. Three types of data were collected: (1) facility level characteristics for a sample of all hospices nationwide, (2) census of intake and discharge characteristics for all patients served by those hospices during the study period, and (3) an extensive interview schedule regarding the quality of care and adequacy of Medicare reimbursement programs was conducted in both hospice and nonhospice settings with a sample of those patients fulfilling certain selection criteria (as well as their primary care person and family).
  • Table of Contents

    Datasets:

    • DS0: Study-Level Files
    • DS1: SPSS-X Input File
    • DS2: SPSS-X Display File
    • DS3: Medical Record Abstract Form (Rec 16)
    • DS4: Bereavement Interview (Rec 15)
    • DS5: Follow-up Principal Care Person Interview (Rec 13)
    • DS6: Follow-up Patient Interview (Rec 12)
    • DS7: Initial Patient Interview (Rec 10)
    • DS8: Initial Principal Care Person Interview (Rec 11)
    • DS9: Principal Care Person Assessment (Rec 14)
    • DS10: Physician Survey (Rec 17)
    • DS11: Dates, Refusals, and Special Code Variables (Rec 35)
    • DS12: Intake/Discharge Form (Rec 919)
Temporal Coverage
  • 1980 / 1983
    Time period: 1980--1983
  • 1980-10-01 / 1983-03-31
    Collection date: 1980-10-01--1983-03-31
Geographic Coverage
  • United States
Sampling
Nonrandom sample of hospice and nonhospice sites including 26 demonstration hospices, 12 non-demonstration hospices and 9 conventional care settings. A complete census for patient intake-discharge data was obtained, and patients were randomly selected for follow-up interviews.
Collection Mode
  • SPSS input files and display files are available in machine-readable form for these data files.

Note
2006-01-12 All files were removed from dataset 13 and flagged as study-level files, so that they will accompany all downloads.2006-01-12 All files were removed from dataset 13 and flagged as study-level files, so that they will accompany all downloads. Funding insitution(s): United States Department of Health and Human Services. Health Care Financing Administration. Robert Wood Johnson Foundation. John A. Hartford Foundation.
Availability
Download
This study is freely available to the general public via web download.
Alternative Identifiers
  • 8466 (Type: ICPSR Study Number)
Publications
  • Gazes, Peter C., Lackland, Daniel T., Mountford, William K., Gilbert, Gregory E., Harley, Russell A.. Comparison of cardiovascular risk factors for high brachial pulse pressure in blacks versus whites (Charleston Heart Study, Evans County Study, NHANES I and II Studies). American Journal of Cardiology.102, (11), 1514-1517.2008.
    • ID: 10.1016/j.amjcard.2008.07.042 (DOI)
  • Bernard, Lori L., Guarnaccia, Charles A.. Two Models of Caregiver Strain and Bereavement Adjustment: A Comparison of Husband and Daughter Caregivers of Breast Cancer Hospice Patients. Gerontologist.43, (6), 808-816.2003.
    • ID: 10.1093/geront/43.6.808 (DOI)
  • Bernard, Lori L., Guarnaccia, Charles A.. Husband and adult-daughter caregivers' bereavement. Omega: Journal of Death and Dying.45, (2), 153 -2002.
    • ID: 10.2190/MXR9-MBEB-NKX6-5B83 (DOI)
  • Miller, P.J., Mike, P.B.. The Medicare Hospice Benefit: Ten years of federal policy for the terminally ill. Death Studies.19, (6), 531-542.1995.
    • ID: 10.1080/07481189508253400 (DOI)
  • Higginson, I.J., McCarthy, M.. A comparison of two measures of quality of life: their sensitivity and validity for patients with advanced cancer. Palliative Medicine.8, (4), 282-290.1994.
    • ID: 10.1177/026921639400800403 (DOI)
  • Scanlan, Brian C.. Hospice for aged persons without cancer: The experience of the Hampshire County (MA) hospice. Journal of Long Term Home Health Care.13, (1), 37-45.1994.
  • Mor, Vincent, Masterson-Allen, Susan. A comparison of hospice vs conventional care of the terminally ill cancer patient. Oncology (Huntington).4, (7), 85-91.1990.
  • Attala, Ellen Patricia. A Comparison of Projected Hospice and Home Health Costs. Thesis, California State University, Dominguez Hills. 1989.
  • McHorney, Colleen A., Mor, Vincent. Predictors of bereavement depression and its health services consequences. Medical Care.26, (9), 882-893.1988.
    • ID: 10.1097/00005650-198809000-00007 (DOI)
  • Mor, Vincent, Greer, David S., Kastenbaum, Robert. Hospice Experiment. Baltimore, MD: Johns Hopkins University Press. 1988.
  • Reuben, David B., Mor, Vincent, Hiris, J.. Clinical symptoms and length of survival in patients with terminal cancer. Archives of Internal Medicine.148, (7), 1586-1591.1988.
    • ID: 10.1001/archinte.148.7.1586 (DOI)
  • Wallston, K.A., Burger, C., Smith, R.A., Baugher, R.J.. Comparing the quality of death for hospice and non-hospice cancer patients. Medical Care.26, (2), 177-182.1988.
    • ID: 10.1097/00005650-198802000-00008 (DOI)
  • Masterson-Allen, Susan, Mor, Vincent, Laliberte, Linda. Turnover in National Hospice Study sites: A reflection of organizational growth. Hospice Journal.3, (2-3), 147-164.1987.
    • ID: 10.1300/J011v03n02_08 (DOI)
  • Mor, Vincent. Hospice and the elderly: Insights from the National Hospice Study. Aging, the Universal Human Experience: Selected Papers from the Symposia of the XIIIth Congress of the International Association of Gerontology.New York: Springer. 1987.
  • Mor, Vincent. Hospice: The older person as patient and caregiver. Generations (San Francisco).11, (3), 19-21.1987.
  • Powers, J.S., Burger, M.C.. Terminal care preferences: Hospice placement and severity of disease. Public Health Reports.102, (4), 444-449.1987.
  • Wachtel, T.J., Mor, Vincent. Physicians' use of health resources for terminal cancer patients: Clinical setting versus physician specialty. Southern Medical Journal.80, (9), 1120-1124.1987.
    • ID: 10.1097/00007611-198708090-00012 (DOI)
  • Aiken, L.H.. Evaluation research and public policy: Lessons from the National Hospice Study. Journal of Chronic Diseases.39, (1), 1-4.1986.
    • ID: 10.1016/0021-9681(86)90101-3 (DOI)
  • Anonymous. National Hospice Study. Journal of Chronic Diseases.39, (1), 1-62.1986.
  • Goldberg, Richard J., Mor, Vincent, Wiemann, M., Greer, David S., Hiris, J.. Analgesic use in terminal cancer patients: Report from the National Hospice Study. Journal of Chronic Diseases.39, (1), 37-45.1986.
    • ID: 10.1016/0021-9681(86)90105-0 (DOI)
  • Greer, David S., Mor, Vincent. An overview of National Hospice Study findings. Journal of Chronic Diseases.39, (1), 5-7.1986.
    • ID: 10.1016/0021-9681(86)90102-5 (DOI)
  • Greer, David S., Mor, Vincent, Morris, J.N., Sherwood, S., Kidder, D., Birnbaum, H.. An alternative in terminal care: Results of the National Hospice Study. Journal of Chronic Diseases.39, (1), 9-26.1986.
    • ID: 10.1016/0021-9681(86)90103-7 (DOI)
  • Kane, Robert L.. Lessons from hospice evaluations. Hospice Journal.2, (3), 3-8.1986.
    • ID: 10.1300/J011v02n03_02 (DOI)
  • Mahoney, John J.. Lessons from hospice evaluations: Counterpoint. Hospice Journal.2, (3), 9-15.1986.
    • ID: 10.1300/J011v02n03_03 (DOI)
  • Mor, Vincent. Assessing patient outcomes in hospice: What to measure?. Hospice Journal.2, (3), 17-35.1986.
    • ID: 10.1300/J011v02n03_04 (DOI)
  • Mor, Vincent, Laliberte, Linda. Simulating the impact of case-mix adjusted hospice rates. Health Care Financing Review.8, (2), 53-64.1986.
  • Mor, Vincent, McHorney, Colleen, Sherwood, Sylvia. Secondary morbidity among the recently bereaved. American Journal of Psychiatry.143, (2), 158-163.1986.
  • Morris, J.N., Mor, Vincent, Goldberg, R.J., Sherwood, S., Greer, D.S., Hiris, J.. The effect of treatment setting and patient characteristics on pain in terminal cancer patients: A report from the National Hospice Study. Journal of Chronic Diseases.39, (1), 27-35.1986.
    • ID: 10.1016/0021-9681(86)90104-9 (DOI)
  • Morris, J.N., Suissa, S., Sherwood, S., Wright, S.M., Greer, David. Last days: A study of the quality of life of terminally ill cancer patients. Journal of Chronic Diseases.39, (1), 47-62.1986.
    • ID: 10.1016/0021-9681(86)90106-2 (DOI)
  • Muurinen, J.M.. The economics of informal care: Labor market effects in the National Hospice Study. Medical Care.24, (11), 1007-1017.1986.
    • ID: 10.1097/00005650-198611000-00005 (DOI)
  • Reuben, David B., Mor, Vincent. Dyspnea in terminally ill cancer patients. Chest.89, (2), 234-236.1986.
    • ID: 10.1378/chest.89.2.234 (DOI)
  • Reuben, David B., Mor, Vincent. Nausea and vomiting in terminal cancer patients. Archives of Internal Medicine.146, (10), 2021-2023.1986.
    • ID: 10.1001/archinte.146.10.2021 (DOI)
  • Goldberg, Richard J., Mor, Vincent. A survey of psychotropic use in terminal cancer patients. Psychosomatics.26, (9), 745-751.1985.
    • ID: 10.1016/S0033-3182(85)72803-4 (DOI)
  • Greer, David S., Mor, Vincent. How Medicare is altering the hospice movement. Hastings Center Report.15, (5), 5-9.1985.
  • Masterson-Allen, Susan, Laliberte, Linda, Wright, S.M., Hepburn, K., Veale-Danner, W., Mor, Vincent, Morris, J.N.. Terminally ill patients' and families' responses to participation in a research study. Evaluation and the Health Professions.8, (1), 83-92.1985.
  • Masterson-Allen, Susan, Mor, Vincent, Laliberte, Linda, Monteiro, L.. Staff burnout in a hospice setting. Hospice Journal.1, (3), 1-15.1985.
    • ID: 10.1300/J011v01n03_01 (DOI)
  • Mor, Vincent, Kidder, D.. Cost savings in hospice: Final results of the National Hospice Study. Health Services Research.20, (4), 407-422.1985.
  • Mor, Vincent, Masterson-Allen, Susan, Goldberg, Richard J., Cummings, Francis J., Glicksman, Arvin S.. Relationship between age at diagnosis and treatments received by cancer patients. Journal of the American Geriatrics Society.33, (9), 585-589.1985.
  • Mor, Vincent, Schwartz, Rachel, Laliberte, Linda, Hiris, Jeffrey. An examination of the effect of reimbursement and organizational structure on the allocation of hospice staff time. Home Health Care Services Quarterly.6, (1), 101-118.1985.
    • ID: 10.1300/J027v06n01_09 (DOI)
  • Mor, Vincent, Wachtel, T.J., Kidder, D.. Patient predictors of hospice choice: Hospital versus home care programs. Medical Care.23, (9), 1115-1119.1985.
    • ID: 10.1097/00005650-198509000-00008 (DOI)
  • Birnbaum, Howard G., Kidder, David. What does hospice cost?. American Journal of Public Health.74, (7), 689-697.1984.
    • ID: 10.2105/AJPH.74.7.689 (DOI)
  • Mor, Vincent, Laliberte, Linda, Morris, J.N., Wiemann, M.. The Karnofsky Performance Status Scale: An examination of its reliability and validity in a research setting. Cancer.53, (9), 2002-2007.1984.
    • ID: 10.1002/1097-0142(19840501)53:9<2002::AID-CNCR2820530933>3.0.CO;2-W (DOI)
  • Greer, David S., Mor, Vincent, Sherwood, S., Morris, J.N., Birnbaum, H.. National Hospice Study analysis plan. Journal of Chronic Diseases.36, (11), 737-780.1983.
    • ID: 10.1016/0021-9681(83)90069-3 (DOI)
  • Mor, Vincent, Birnbaum, H.. Medicare legislation for hospice care: Implications of National Hospice Study data. Health Affairs.2, (2), 80-90.1983.
    • ID: 10.1377/hlthaff.2.2.80 (DOI)
  • Mor, Vincent, Hiris, Jeffrey. Determinants of site of death among hospice cancer patients. Journal of Health and Social Behavior.24, (4), 375-385.1983.
    • ID: http://www.jstor.org/stable/2136403 (URL)
  • Mor, Vincent, Laliberte, Linda. Roles ascribed to volunteers: An examination of different types of hospice organizations. Evaluation and the Health Professions.6, (4), 453-464.1983.

Update Metadata: 2015-08-05 | Issue Number: 6 | Registration Date: 2015-06-15

Greer, David; Mor, Vincent (1988): National Hospice Study: Patient and Facility Data, [1980-1983]. Version 1. Version: v1. ICPSR - Interuniversity Consortium for Political and Social Research. Dataset. https://doi.org/10.3886/ICPSR08466.v1