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Pediatric Home Care: Results of a National Evaluation of Programs for Ventilator-Assisted Children, 1974-1983

Version
v0
Resource Type
Dataset : survey data
Creator
  • Aday, Lu Ann
  • Andersen, Ronald
Other Title
  • Archival Version (Subtitle)
Publication Date
1989-03-03
Funding Reference
  • United States Department of Health and Human Services. Health Resources and Services Administration. Maternal and Child Health Bureau
  • Georgetown University. Center for Child and Human Development
Language
English
Free Keywords
assisted living; children; home health care; program evaluation; quality of life
Description
  • Abstract

    This collection examines three programs designed to facilitate the discharge of ventilator-assisted children to the home or a homelike alternative. Program personnel, advisory board members, and the primary caregivers of the children were interviewed as part of the evaluation. This study is the first comprehensive and systematic effort of its kind to develop a conceptual and methodological approach to gathering data on this new population of technology-assisted children. The ultimate outcomes examined were the ventilator-assisted child's quality of life, the stress and adaptation experienced by the care- giver(s) and family unit, and the cost-effectiveness of the alternative home care arrangements relative to traditional inpatient care.
  • Table of Contents

    Datasets:

    • DS0: Study-Level Files
    • DS1: Main Questionnaire - Key Informant Interview
    • DS2: Main Questionnaire - Key Informant Interview Record Layout
    • DS3: Main Questionnaire - Key Informant Interview Frequencies
    • DS4: Main Questionnaire - Patient (Caregiver Interview) File
    • DS5: Main Questionnaire - Patient (Caregiver Interview) File Record Layout
    • DS6: Main Questionnaire - Patient (Caregiver Interview) File Frequencies
    • DS7: Specialty Coding - Open Ended Questions
    • DS8: Specialty Coding - Open Ended Questions Record Layout
    • DS9: Specialty Coding - Open Ended Questions Frequencies
    • DS10: Additional Conditions of the Child
    • DS11: Additional Conditions of the Child Record Layout
    • DS12: Additional Conditions of the Child Frequencies
    • DS13: Hospital Stay
    • DS14: Hospital Stay Record Layout
    • DS15: Hospital Stay Frequencies
    • DS16: Patient Level - Constructed Variables
    • DS17: Patient Level - Constructed Variables Record Layout
    • DS18: Patient Level - Constructed Variables Frequencies
    • DS19: Hospital Level - Constructed Variables
    • DS20: Hospital Level - Constructed Variables Record Layout
    • DS21: Hospital Level - Constructed Variables Frequencies
    • DS22: Caregivers In-Home - Constructed Variables
    • DS23: Caregivers In-Home - Constructed Variables Record Layout
    • DS24: Caregivers In-Home - Constructed Variables Frequencies
    • DS25: Caregivers Outside-Home - Constructed Variables
    • DS26: Caregivers Outside-Home - Constructed Variables Record Layout
    • DS27: Caregivers Outside-Home - Constructed Variables Frequencies
    • DS28: Cost Analysis - Subset of 36 Children
    • DS29: Cost Analysis - Subset of 36 Children Record Layout
    • DS30: Cost Analysis - Subset of 36 Children Frequencies
    • DS31: AHA Hospital Characteristics
    • DS32: AHA Hospital Characteristics Record Layout
    • DS33: AHA Hospital Characteristics Frequencies
Temporal Coverage
  • 1974 / 1983
    Time period: 1974--1983
  • 1974 / 1983
    Collection date: 1974--1983
Geographic Coverage
  • United States
Sampled Universe
Ventilator-assisted children in the United States.
Collection Mode
  • This data collection includes frequencies, record layouts, or maps for each data file. In addition to the primary data collected in the survey, analytic variables generated through combining categories or sets of variables in the Caregiver Questionnaire are also included.

Availability
Delivery
This version of the study is no longer available on the web. If you need to acquire this version of the data, you have to contact ICPSR User Support (help@icpsr.umich.edu).
Alternative Identifiers
  • 8948 (Type: ICPSR Study Number)
Relations
  • Is previous version of
    DOI: 10.3886/ICPSR08948.v1
Publications
  • Aday, Lu Ann, Aitken, Marlene J., Wegener, Donna Hope. Pediatric Home Care: Results of a National Evaluation of Programs for Ventilator Assisted Children. Chicago: Pluribus Press. 1988.

Update Metadata: 2015-08-05 | Issue Number: 6 | Registration Date: 2015-06-15

Aday, Lu Ann; Andersen, Ronald (1989): Pediatric Home Care: Results of a National Evaluation of Programs for Ventilator-Assisted Children, 1974-1983. Archival Version. Version: v0. ICPSR - Interuniversity Consortium for Political and Social Research. Dataset. https://doi.org/10.3886/ICPSR08948