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Infant Health and Development Program (IHDP): Enhancing the Outcomes of Low Birth Weight, Premature Infants in the United States, 1985-1988

Version
v1
Resource Type
Dataset : clinical data
Creator
  • Gross, Ruth T., et al.
Other Title
  • Version 1 (Subtitle)
Publication Date
1993-01-06
Funding Reference
  • Robert Wood Johnson Foundation
  • Pew Charitable Trusts
  • United States Department of Health and Human Services. Health Resources and Services Administration. Maternal and Child Health Bureau
  • United States Department of Health and Human Services. National Institutes of Health. Eunice Kennedy Shriver National Institute of Child Health and Human Development
Language
English
Free Keywords
child development; health status; infants; medical care; mental health; physical condition; premature births
Description
  • Abstract

    The Infant Health and Development Program was a collaborative, randomized, longitudinal, multisite clinical trial designed to evaluate the efficacy of comprehensive early intervention in reducing the developmental and health problems of low birth weight, premature infants. An intensive intervention extending from hospital discharge to 36 months corrected age was administered between 1985 and 1988 at eight different sites. The study sample of infants was stratified by birth weight (2,000 grams or less, 2,001-2,500 grams) and randomized to the Intervention Group or the Follow-Up Group. The Intervention Group received home visits, attendance at a special child development center, and pediatric follow-up. The Follow-Up Group received only the pediatric follow-up component of the program. Measures of cognitive development, behavioral status, health status, and other variables were collected from both groups at predetermined time points. Cognitive development was assessed by the Stanford-Binet Intelligence Scale, the Bayley Mental and Motor Scales, the Peabody Picture Vocabulary Test--Revised, and the Beery-Buktenica Developmental Test of Visual Motor Integration. Behavior problems were measured using the Richman-Graham Behavior Checklist and Achenbach's Child Behavior Checklist. Health status was evaluated through the dimensions of morbidity (defined as the presence or absence of health conditions), functional status (defined by limitations in activities of daily living due to health problems), changes in physical growth, and maternal perception of the child's health. The many other variables and indices in the data collection include site, pregnancy complications, child's birth weight and gestation age, birth order, child's gender, household composition, day care arrangements, source of health care, quality of the home environment, parents' race and ethnicity, and maternal age, education, IQ, and employment.
  • Table of Contents

    Datasets:

    • DS0: Study-Level Files
    • DS1: INVNTRY: Analysis Group Infant Inventory
    • DS2: SAS Control Cards for INVNTRY: Analysis Group Infant Inventory
    • DS3: PADS: Primary Analysis Dataset
    • DS4: SAS Control Cards for PADS: Primary Analysis Dataset
    • DS5: SUMSCORE: Summary Score Dataset
    • DS6: SAS Control Cards for SUMSCORE: Summary Score Dataset
    • DS7: F3A: Birth Registration, Part A
    • DS8: SAS Control Cards for F3A: Birth Registration, Part A
    • DS9: F3B: Birth Registration, Part B
    • DS10: SAS Control Cards for F3B: Birth Registration, Part B
    • DS11: F6A: Neonatal Health Summary, Part A
    • DS12: SAS Control Cards for F6A: Neonatal Health Summary, Part A
    • DS13: F6B: Neonatal Health Summary, Part B
    • DS14: SAS Control Cards for F6B: Neonatal Health Summary, Part B
    • DS15: F7: 40-Week Family Interview
    • DS16: SAS Control Cards for F7: 40-Week Family Interview
    • DS17: F8: 40-Week Neurodevelopmental Exam
    • DS18: SAS Control Cards for F8: 40-Week Neurodevelopmental Exam
    • DS19: F9: 40-Week Health Summary Exam
    • DS20: SAS Control Cards for F9: 40-Week Health Summary Exam
    • DS21: F11: 4-Month Family Interview
    • DS22: SAS Control Cards for F11: 4-Month Family Interview
    • DS23: F12: 4-Month Neurodevelopmental Exam
    • DS24: SAS Control Cards for F12: 4-Month Neurodevelopmental Exam
    • DS25: F13: 4-Month Health Summary Exam
    • DS26: SAS Control Cards for F13: 4-Month Health Summary Exam
    • DS27: F14: 8-Month Family Interview
    • DS28: SAS Control Cards for F14: 8-Month Family Interview
    • DS29: F15: 8-Month Neurodevelopmental Exam
    • DS30: SAS Control Cards for F15: 8-Month Neurodevelopmental Exam
    • DS31: F16: 8-Month Health Summary Exam
    • DS32: SAS Control Cards for F16: 8-Month Health Summary Exam
    • DS33: F17: 8-Month Health Exam
    • DS34: SAS Control Cards for F17: 8-Month Health Exam
    • DS35: F18: 12-Month Family Interview
    • DS36: SAS Control Cards for F18: 12-Month Family Interview
    • DS37: F19: 12-Month Neurodevelopmental Exam
    • DS38: SAS Control Cards for F19: 12-Month Neurodevelopmental Exam
    • DS39: F20: 12-Month Interval Health Interview
    • DS40: SAS Control Cards for F20: 12-Month Interval Health Interview
    • DS41: F21: 12-Month Health Exam
    • DS42: SAS Control Cards for F21: 12-Month Health Exam
    • DS43: F22: 12-Month Home Assessment
    • DS44: SAS Control Cards for F22: 12-Month Home Assessment
    • DS45: F23: 12-Month Bayley Mental Scale
    • DS46: SAS Control Cards for F23: 12-Month Bayley Mental Scale
    • DS47: F24: 12-Month Bayley Motor Scale
    • DS48: SAS Control Cards for F24: 12-Month Bayley Motor Scale
    • DS49: F25: 12-Month Bayley Test Session Summary
    • DS50: SAS Control Cards for F25: 12-Month Bayley Test Session Summary
    • DS51: F28: 18-Month Family Interview
    • DS52: SAS Control Cards for F28: 18-Month Family Interview
    • DS53: F29: 18-Month Neurodevelopmental Exam
    • DS54: SAS Control Cards for F29: 18-Month Neurodevelopmental Exam
    • DS55: F30: 18-Month Interval Health Interview
    • DS56: SAS Control Cards for F30: 18-Month Interval Health Interview
    • DS57: F31: 18-Month Health Exam
    • DS58: SAS Control Cards for F31: 18-Month Health Exam
    • DS59: F33: 18-Month Peabody Picture Vocabulary Test--Revised Summary
    • DS60: SAS Control Cards for F33: 18-Month Peabody Picture Vocabulary Test--Revised Summary
    • DS61: F34: 24-Month Family Interview
    • DS62: SAS Control Cards for F34: 24-Month Family Interview
    • DS63: F35: 24-Month Neurodevelopmental Exam
    • DS64: SAS Control Cards for F35: 24-Month Neurodevelopmental Exam
    • DS65: F36: 24-Month Interval Health Interview
    • DS66: SAS Control Cards for F36: 24-Month Interval Health Interview
    • DS67: F37: 24-Month Health Exam
    • DS68: SAS Control Cards for F37: 24-Month Health Exam
    • DS69: F38: 24-Month Child Behavior Interview
    • DS70: SAS Control Cards for F38: 24-Month Child Behavior Interview
    • DS71: F39: 24-Month Bayley Mental Scale
    • DS72: SAS Control Cards for F39: 24-Month Bayley Mental Scale
    • DS73: F40: 24-Month Bayley Motor Scale
    • DS74: SAS Control Cards for F40: 24-Month Bayley Motor Scale
    • DS75: F41: 24-Month Bayley Test Session Summary
    • DS76: SAS Control Cards for F41: 24-Month Bayley Test Session Summary
    • DS77: F43A: 24-Month Child Behavior Interview, A
    • DS78: SAS Control Cards for F43A: 24-Month Child Behavior Interview, A
    • DS79: F43B: 24-Month Child Behavior Interview, B
    • DS80: SAS Control Cards for F43B: 24-Month Child Behavior Interview, B
    • DS81: F47: 30-Month Family Interview
    • DS82: SAS Control Cards for F47: 30-Month Family Interview
    • DS83: F48: 30-Month Neurodevelopmental Exam
    • DS84: SAS Control Cards for F48: 30-Month Neurodevelopmental Exam
    • DS85: F49: 30-Month Interval Health Interview
    • DS86: SAS Control Cards for F49: 30-Month Interval Health Interview
    • DS87: F50: 30-Month Health Exam
    • DS88: SAS Control Cards for F50: 30-Month Health Exam
    • DS89: F52: 36-Month Family Interview
    • DS90: SAS Control Cards for F52: 36-Month Family Interview
    • DS91: F53: 36-Month Neurodevelopmental Exam
    • DS92: SAS Control Cards for F53: 36-Month Neurodevelopmental Exam
    • DS93: F54: 36-Month Interval Health Interview
    • DS94: SAS Control Cards for F54: 36-Month Interval Health Interview
    • DS95: F55: 36-Month Health Exam
    • DS96: SAS Control Cards for F55: 36-Month Health Exam
    • DS97: F56: 36-Month Home Assessment
    • DS98: SAS Control Cards for F56: 36-Month Home Assessment
    • DS99: F57: 36-Month Stanford-Binet IQ Scale
    • DS100: SAS Control Cards for F57: 36-Month Stanford-Binet IQ Scale
    • DS101: F58: 36-Month Peabody Picture Vocabulary Test-Revised
    • DS102: SAS Control Cards for F58: 36-Month Peabody Picture Vocabulary Test-Revised
    • DS103: F59: 36-Month Visual Motor Integration Test
    • DS104: SAS Control Cards for F59: 36-Month Visual Motor Integration Test
    • DS105: F61: 36-Month Child Behavior Interview
    • DS106: SAS Control Cards for F61: 36-Month Child Behavior Interview
    • DS107: F62: 36-Month Test Session Summary
    • DS108: SAS Control Cards for F62: 36-Month Test Session Summary
    • DS109: F63: 36-Month Growth Data Summary
    • DS110: SAS Control Cards for F63: 36-Month Growth Data Summary
    • DS111: F66A: 36-Month Child Behavior Questionnaire, A
    • DS112: SAS Control Cards for F66A: 36-Month Child Behavior Questionnaire, A
    • DS113: F66B: 36-Month Child Behavior Questionnaire, B
    • DS114: SAS Control Cards for F66B: 36-Month Child Behavior Questionnaire, B
    • DS115: F71: Twin Zygosity Record
    • DS116: SAS Control Cards for F71: Twin Zygosity Record
    • DS117: F85: Supplemental Health Conditions Codes
    • DS118: SAS Control Cards for F85: Supplemental Health Conditions Codes
    • DS119: SUMBCR18: 18-Month Daily Classroom Summary
    • DS120: SAS Control Cards for SUMBCR18: 18-Month Daily Classroom Summary
    • DS121: SUMBCR24: 24-Month Daily Classroom Summary
    • DS122: SAS Control Cards for SUMBCR24: 24-Month Daily Classroom Summary
    • DS123: SUMBCR30: 30-Month Daily Classroom Summary
    • DS124: SAS Control Cards for SUMBCR30: 30-Month Daily Classroom Summary
    • DS125: SUMBCR36: 36-Month Daily Classroom Summary
    • DS126: SAS Control Cards for SUMBCR36: 36-Month Daily Classroom Summary
    • DS127: SUMBHV04: 4-Month Home Visit Report
    • DS128: SAS Control Cards for SUMBHV04: 4-Month Home Visit Report
    • DS129: SUMBHV08: 8-Month Home Visit Report
    • DS130: SAS Control Cards for SUMBHV08: 8-Month Home Visit Report
    • DS131: SUMBHV12: 12-Month Home Visit Report
    • DS132: SAS Control Cards for SUMBHV12: 12-Month Home Visit Report
    • DS133: SUMBHV18: 18-Month Home Visit Report
    • DS134: SAS Control Cards for SUMBHV18: 18-Month Home Visit Report
    • DS135: SUMBHV24: 24-Month Home Visit Report
    • DS136: SAS Control Cards for SUMBHV24: 24-Month Home Visit Report
    • DS137: SUMBHV30: 30-Month Home Visit Report
    • DS138: SAS Control Cards for SUMBHV30: 30-Month Home Visit Report
    • DS139: SUMBHV36: 36-Month Home Visit Report
    • DS140: SAS Control Cards for SUMBHV36: 36-Month Home Visit Report
    • DS141: Transport Format SAS Library Containing the 59 Evaluation Data Files
    • DS142: Transport Format SAS Library Containing the 11 Implementation Data Files
    • DS143: Codebook, Volume I (Introduction to the Archives...Volumes I and II)
    • DS144: Codebook, Volume II (Evaluation Data Documentation, Volumes I and II)
    • DS145: Codebook, Volume III (Evaluation Data Documentation, Volumes III and IV)
    • DS146: Codebook, Volume IV (Evaluation Data Documentation Volume V)
    • DS147: Codebook, Volume V (Implementation Data Documentation, ICPSR Data Maps for Implementation Data)
    • DS148: Codebook, Volume VI (Manual of Operations, Volume I)
    • DS149: Codebook, Volume VII (Manual of Operations, Volumes II and III)
    • DS150: Codebook, Volume VIII (Measures Documentation Notebook, Dropped Variables Documentation Report)
    • DS151: Codebook, Volume IX (Infant Assessor Manual, et al.)
Temporal Coverage
  • 1985 / 1988
    Time period: 1985--1988
  • 1985 / 1988
    Collection date: 1985--1988
Geographic Coverage
  • United States
Sampled Universe
All low birth weight (2,500 grams or less), premature (37 weeks gestational age or less) infants born at eight sites (University of Arkansas for Medical Sciences, Albert Einstein College of Medicine, Harvard Medical School, University of Miami School of Medicine, University of Pennsylvania School of Medicine, University of Texas Health Science Center at Dallas, University of Washington School of Medicine, and Yale University School of Medicine) between November 1984 and August 1985. All study infants reached 40 weeks post-conceptual age between January 7, 1985, and October 9, 1985.
Sampling
After all eligibility criteria were applied during the screening procedure, 1302 of the 4551 infants born at the eight sites during the recruitment period were determined eligible. After consent and acceptance of assignment to study group were considered, 1,090 were enrolled in the study. This number included a total of 103 twin pairs and 2 cousin pairs.
Collection Mode
  • The data is grouped in two parts: 59 Evaluation files (odd-numbered parts, 1-117) and 11 Implementation files (odd-numbered parts, 119-139).

Availability
Download
This study is freely available to the general public via web download.
Alternative Identifiers
  • 9795 (Type: ICPSR Study Number)
Publications
  • Ann Wy, P., Rettiganti, M., Li, J., Yap, V., Barrett, K., Whiteside-Mansell, L., Casey, P.. Impact of intraventricular hemorrhage on cognitive and behavioral outcomes at 18 years of age in low birth weight preterm infants. Journal of Perinatology.2015.
    • ID: 10.1038/jp.2014.244 (DOI)
  • Brooks-Gunn, Jeanne, Klebanov, Pamela, Smith, Judith R., Lee, Kyunghee. Effects of combining public assistance and employment on mothers and their young children. Women and Health.32, (3), 179-210.2001.
  • Whiteside-Mansell, Leanne, Bradley, Robert H., Little, Todd D., Corwyn, Flynn, Spiker, Donna. An examination of cross-racial comparability of mother-child interaction among African American and Anglo American families. Journal of Marriage and Family.63, (3), 767-778.2001.
    • ID: 10.1111/j.1741-3737.2001.00767.x (DOI)
  • Brooks-Gunn, Jeanne, Duncan, Greg J., Britto, Pia Rebello. Are socioeconomic gradients for children similar to those for adults?: achievement and health of children in the United States. Developmental Health and the Wealth of Nations: Social, Biological, and Educational Dynamics.New York, NY: Guildford Press. 1999.
  • Berlin, L.J., Brooks-Gunn, Jeanne, McCarton, C.. The effectiveness of early interventions: Examining risk factors and pathways to enhanced development. Preventive Medicine.27, 238-245.1998.
    • ID: 10.1006/pmed.1998.0282 (DOI)
  • Berlin, Lisa J., O'Neal, Colleen, Brooks-Gunn, Jeanne. What makes early intervention programs work? The program, its participants, and their interaction. Zero to Three.18, (4), 4-15.1998.
  • Taeusch, H. William, Ballard, Roberta A., Gleason, Christine A., Avery, Mary Ellen. Avery's Diseases of the Newborn. Philadelphia, PA: Elsevier Saunders. 1998.
  • Gross, R.T., Spiker, D., Haynes, C.. Helping Low Birth Weight, Premature Babies: The Infant Health and Development Program. Stanford, CA: Stanford University Press. 1997.
  • Haas, Jennifer S., McCormick, Marie C.. Hospital use and health status of women during the 5 years following the birth of a premature, low-birthweight infant. American Journal of Public Health.87, (7), 1151-1155.1997.
    • ID: 10.2105/AJPH.87.7.1151 (DOI)
  • Smith, Judith R., Brooks-Gunn, Jeanne, Klebanov, Pamela K.. Consequences of living in poverty for young children's cognitive and verbal ability and early school achievement. Consequences of Growing Up Poor.New York: Russell Sage Foundation. 1997.
  • Strauss, Richard S., Dietz, William H.. Effects of intrauterine growth retardation in premature infants on early childhood growth. Journal of Pediatrics.130, (1), 95-102.1997.
  • Tremblay, Richard E., Craig, Wendy M.. Developmental crime prevention. Building a Safer Society: Strategic Approaches to Crime Pevention. Crime and Justice: A Review of Research.Chicago, IL: University of Chicago Press. 1995.
  • Duncan, Greg J., Brooks-Gunn, Jeanne, Klebanov, Pamela Kato. Economic deprivation and early childhood development. Child Development.65, (2), 296-318.1994.
    • ID: http://www.jstor.org/stable/1131385 (URL)
  • Klebanov, Pamela Kato, Brooks-Gunn, Jeanne, Duncan, Greg J.. Does neighborhood and family poverty affect mothers' parenting, mental health, and social support?. Journal of Marriage and Family.56, (2), 441-455.1994.
    • ID: http://www.jstor.org/stable/353111 (URL)
  • Brooks-Gunn, Jeanne, Duncan, Greg J., Klebanov, Pamela Kato, Sealand, Naomi. Do Neighborhoods Influence Child and Adolescent Development?. American Journal of Sociology.99, (2), 353-395.1993.
    • ID: 10.1086/230268 (DOI)
  • Constantine, W.L., Haynes, C., Spiker, D., Constantine, N.A.. Recruitment and retention in a multisite clinical trial for low birth weight infants. Journal of Developmental and Behavioral Pediatrics.14, (1), 1-7.1993.
    • ID: 10.1097/00004703-199302000-00001 (DOI)
  • LeTendre, D., Spiker, D., Constantine, N.A.. Establishing a ceiling on the Bayley Scales of Infant Development at 24 months. Advances in Infancy Research, Vol. 7.Norwood, NJ: Ablex. 1992.
  • Spiker, D., Kraemer, H.C., Constantine, N.A., Bryant, D.. Reliability and validity of behavior problem checklists as measures of stable traits in low birth weight preschool children. Child Development.63, (6), 1481-1496.1992.
    • ID: http://www.jstor.org/stable/1131570 (URL)
  • Anonymous. Enhancing the outcomes of low-birth-weight, premature infants: A multisite, randomized trial. JAMA, The Journal of the American Medical Association.263, (22), 3035-3042.1990.
  • Infant Health and Development Program. Enhancing the outcomes of low-birth weight, premature infants. JAMA, The Journal of the American Medical Association.263, 3035-3042.1990.
    • ID: 10.1001/jama.1990.03440220059030 (DOI)
  • Constantine, N.A., Kraemer, H.C., Kendall- Tackett, K.A., Bennett, F.C., Tyson, J.E., Gross, R.T.. Use of physical and neurologic observations in assessment of gestational age in low birth weight infants. Journal of Pediatrics.110, (6), 921-928.1987.

Update Metadata: 2015-08-05 | Issue Number: 6 | Registration Date: 2015-06-15

Gross, Ruth T., et al. (1993): Infant Health and Development Program (IHDP): Enhancing the Outcomes of Low Birth Weight, Premature Infants in the United States, 1985-1988. Version 1. Version: v1. ICPSR - Interuniversity Consortium for Political and Social Research. Dataset. https://doi.org/10.3886/ICPSR09795.v1