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Child Care and Children with Special Needs: Challenges for Low Income Families, Maine, United States, 2002-2005

Version
v0
Resource Type
Dataset : survey data
Creator
  • Ward, Helen
  • Morris, Lisa A.
Other Title
  • Archival Version (Subtitle)
Publication Date
2010-06-11
Publication Place
Ann Arbor, Michigan
Publisher
  • Inter-University Consortium for Political and Social Research
Funding Reference
  • United States Department of Health and Human Services. Administration for Children and Families. Child Care Bureau
Language
English
Free Keywords
Schema: ICPSR
child care; child health; child welfare; developmentally disabled; families; mental disorders; physical disabilities; special needs students
Description
  • Abstract

    This project was a mixed-method, multi-level study of low income families of children with special needs and the system which served them, focusing primarily on child care, employment, and balancing work and family. This approach included an analysis of existing national and state-level data sets, statewide surveys of parents and child care providers, and a field study to look at these issues at the local level in three selected communities in the state of Maine: Portland, Lewiston/Auburn, and Presque Isle. While the primary focus was on access to child care, this project also looked at the related issues of welfare reform, the impact of work force participation on having a child with special needs, and the issue of coordination of early intervention services with the child care system. The goal was to understand better the issues facing low income families with special needs children across the programs and policies affecting their employment, access to child care, and meeting the special needs of their children. In the first year of the study, qualitative research was conducted to learn directly from parents about their experiences. In the second and third years, a field study of three communities was conducted as well as statewide surveys and analysis of national data bases to supplement the data collected in the first year. This data collection is comprised of the two quantitative data files produced during the second and third years of the study which are described in more detail below. Child Care Provider Survey: The Child Care Provider Survey was a statewide survey of child care providers selected at random from the list of licensed providers in Maine given by the state licensing agency. Questions focused on the perspective of child care providers on the issues of access and inclusion that parents raised. Parent Survey: The Parent Survey was a statewide survey of parents and children aged 0-18 years with diagnosed special needs (enrolled in Maine Care - Katie Beckett and Title V eligibility groups - and Child Development Services early intervention caseloads). Questions focused on child care utilization and work experiences in relation to children with special needs. Researchers interested in information about the qualitative data should contact the Child Care and Children with Special Needs Project Web site.
  • Methods

    The mixed-methods study methodology included: Focus groups and individual in-depth interviews with low income (below 225 percent of the federal poverty level) parents with at least one child age six or under with special needs. These were conducted in three communities in Maine (Bath/Brunswick, Lewiston/Auburn and Presque Isle) and in Connecticut (Waterbury, Manchester and Norwich). The researchers also interviewed with parents in Portland (N=41).; A field study consisted of in-depth interviews with TANF caseworkers and case workers at the multi-barrier agencies (which help TANF families overcome barriers to employment), physical, occupational and speech therapists, child care providers, staff at Child Care Plus ME (which provide assistance to child care providers in serving children with special needs), and staff at the child care resource and referral agencies (called RDCs in Maine) in three communities in Maine: Presque Isle, Lewiston/Auburn and Portland (N=66).; A statewide survey of a random sample of licensed child care providers in Maine, which examined the issues faced serving children with special needs (N=179).; A statewide survey of parents of children with diagnosed special needs across the income spectrum in Maine. Parents responded to a mailing sent to 4,000 families receiving services from Child Development Services (CDS) and 2,200 families enrolled in Maine Care (Title V and the Katie Beckett Waiver eligibility groups) (N=441).; An analysis of data from families with children participating in the National Survey of America's Families (NSAF). This analysis allowed researchers to compare work patterns of families with and without a child with special needs and among different types of special needs. In order to generate sample sizes large enough to reliably investigate relationships between child special needs and parental employment outcomes, data were extracted from all three waves (1997, 1999 and 2002) of the NSAF and merged to create a pooled sample of primary caregivers and their children. The pooled sample consists of 81,841 caregivers who are either the biological parent to the child or step or adoptive parent who answered questions about 104,556 children under the age of 18. Eleven percent (N=8,914) of these families reported having a child with a mental or physical disability and 5.2 percent (N=4,240) reported having a child in poor health. Among the sampled children ages 6 to 17, 7 percent (N=4,713) are reported by their parent to have behavioral or emotional problems.;
  • Methods

    ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection: Performed consistency checks.; Created variable labels and/or value labels.; Standardized missing values.; Created online analysis version with question text.; Performed recodes and/or calculated derived variables.; Checked for undocumented or out-of-range codes..
  • Methods

    Response Rates: Child Care Provider Survey: 41.6 percent Parent Survey: 7 percent
  • Abstract

    Datasets:

    • DS0: Study-Level Files
    • DS1: Child Care Provider Survey
    • DS2: Parent Survey Public-Use Data
    • DS3: Parent Survey Restricted-Use Data
Temporal Coverage
  • Time period: 2002--2005
  • 2002 / 2005
  • Collection date: 2002--2005
  • 2002 / 2005
Geographic Coverage
  • Maine
  • United States
Sampled Universe
Child Care Provider Survey: A random sample of 430 child care providers in Maine drawn from state agency lists of licensed providers. Parent Survey: Entire caseload of parents of children with special needs on the Child Development Services list and on the Maine Care list. Smallest Geographic Unit: State
Sampling
Child Care Provider Survey: A random sample of 430 providers from the list of licensed providers in Maine given by the Division of Licensing, Child Care Licensing Unit at the Maine Department of Health and Human Services were mailed a self-administered survey. Parent Survey: Entire caseload of parents of children with special needs -- 6200 parents (approximately 4000 on the Child Development Services (CDS) list and 2200 on the Maine Care list) were mailed a packet explaining the study and asking them to call for an interview. The Sample does not include children with undiagnosed health conditions or disabilities, or disabilities/conditions too mild to qualify for Maine Care or CDS.
Collection Mode
  • mail questionnaire
  • telephone interview
Note
2018-08-06 Question Text and a publicly-available codebook file was added for the Parent Survey Restricted-Use Data (DS3).2010-12-16 The Restricted Data Use Agreement has been updated.2010-06-14 A few string variables have responses over 244 characters in the Child Care Provider Survey Data (DS1) and the Parent Survey Restricted Data (DS3). Due to Stata limitations, these responses have been summarized in order to produce Stata files. The full responses can be found in the codebook. Funding institution(s): United States Department of Health and Human Services. Administration for Children and Families. Child Care Bureau (90YE0036).
Availability
Delivery
One or more files in this study are not available for download due to special restrictions; consult the study documentation to learn more on how to obtain the data.
Alternative Identifiers
  • 27001 (Type: ICPSR Study Number)
Relations
  • Is previous version of
    DOI: 10.3886/ICPSR27001.v1
Publications
  • Ward, Helen D., Atkins, Julie A., Oldham, Erin E.. Child Care and Work Challenges for Maine’s Parents of Children with Special Needs. Maine Policy Review.18, (1), 82-87.2009.
    • ID: https://digitalcommons.library.umaine.edu/mpr/vol18/iss1/12 (URL)
  • Ward, Helen D., Atkins, Julie A., Herrick, Angela, Morris, Lisa M., Morris, Patricia, Oldham, Erin. Child Care and Children with Special Needs: Challenges for Low Income Families: Final Report. Institute for Child and Family Policy.Portland, ME: Edmund S. Muskie School of Public Service. 2006.
    • ID: http://muskie.usm.maine.edu/specialneeds/PDFs/B&Wfinalwithcover.pdf (URL)
  • Ward, Helen D., Atkins, Julie A., Herrick, Angela, Morris, Patricia. Child Care and Children with Special Needs: Challenges for Low Income Families: Parents' Voices. Edmund S. Muskie School of Public Service.Portland, ME: University of Southern Maine. 2004.
    • ID: http://muskie.usm.maine.edu/specialneeds/PDFs/parentsvoices.pdf (URL)
  • Ward, Helen D.. Child Care and Special Needs Children: Challenges for Low-income Families. . 2001.

Update Metadata: 2019-09-04 | Issue Number: 10 | Registration Date: 2015-06-16

Ward, Helen; Morris, Lisa A. (2010): Child Care and Children with Special Needs: Challenges for Low Income Families, Maine, United States, 2002-2005. Archival Version. Version: v0. ICPSR - Interuniversity Consortium for Political and Social Research. Dataset. http://doi.org/10.3886/ICPSR27001