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HIV Stigma in a Population of Adults Age 50 and Over in the Pacific Northwest, 2003-2005

Version
v1
Resource Type
Dataset : clinical data, survey data
Creator
  • Emlet, Charles A. (University of Washington-Tacoma)
Other Title
  • Version 1 (Subtitle)
Publication Date
2013-03-29
Funding Reference
  • United States Department of Health and Human Services. National Institutes of Health. National Institute of Mental Health
Language
English
Free Keywords
aging; AIDS; demographic characteristics; depression (psychology); HIV; mental health; older adults; social distance
Description
  • Abstract

    Older adults are increasingly becoming impacted by HIV disease, both as newly infected individuals and as long-term survivors of HIV/AIDS living into older age. HIV-related stigma impacts the quality of life of all persons with HIV/AIDS. However, little is known about HIV-related stigma in older adults because many studies do not include older subjects or ignore age as a variable. This mixed methods study examined the experiences of HIV-related stigma in a sample of 25 older adults with HIV/AIDS from the Pacific Northwest. Quantitative methods measured HIV stigma and depression, while in-depth qualitative interviews captured the lived experiences of these individuals. Stigma was positively and significantly correlated with depression and stigma was found to be significantly higher in African American, as compared to White informants. Qualitative interviews yielded 11 themes that correspond to the four categories constructed in the stigma instrument. Rejection, disclosure concerns, stereotyping, protective silence and feeling "other", were all common experiences of these individuals.
  • Abstract

    The purpose of this study was to explore the experiences of HIV stigma in a population of older, HIV-infected adults. A mixed-methods approach was used in order to gain objective measures of stigma, while triangulating those findings with qualitative data gleaned from personal experiences.
  • Abstract

    Direct service staff, such as case managers, from agencies who agreed to recruit participants for the study identified potential participants. During their initial contact with the respondents, providers would briefly describe the study, and referred subjects to the principal investigator (PI). Informed consent documents were signed at that time. Participants were compensated for their time. A majority of the interviews (approximately 20), were conducted at the local AIDS service organization (ASO), with the remaining interviews completed at the PI's office. Each respondent was interviewed one time with interviews lasting between 1-2 hours. Both quantitative and qualitative data were gathered during the interview.
  • Abstract

    The dataset contains 87 variables. 12 variables contain demographic information, 53 variables were derived from the HIV Stigma scale, and 21 variables were derived from the CES-D scale.
  • Methods

    Presence of Common Scales: CES-D (Center for Epidemiological Studies Depression Scale); HIV Stigma Scale (Berger, 1996);
  • Table of Contents

    Datasets:

    • DS1: HIV Stigma in a Population of Adults Age 50 and Over in the Pacific Northwest, 2003-2005
Temporal Coverage
  • 2003 / 2005
    Time period: 2003--2005
  • 2003-08 / 2004-12
    Collection date: 2003-08--2004-12
Geographic Coverage
  • United States
Sampled Universe
Participants, age 50 and older with a diagnosis of HIV or AIDS, were recruited from a local AIDS Service organization (ASO), county public health, infectious disease clinics, and medical centers. Smallest Geographic Unit: region
Sampling
Participants (n=25) were recruited from the local AIDS service organization (ASO), county public health, infectious disease clinics, and medical centers. In comparing the study sample to the overall client population of the ASO, women and African American elders were overrepresented. Approximately 28 percent of clients from the ASO are 50 years or older. Purposive sampling techniques were used, however, because of the relatively small number of potential participants and difficulty in identifying and locating participants. No attempt was made to ensure that the study sample is representative of the overall ASO client population.
Collection Mode
  • To protect the confidentiality of respondents, all variables that could be used to identify individuals have been collapsed or recoded on the public use files. These modifications should not affect analytic uses of the public use files.

Note
Funding insitution(s): United States Department of Health and Human Services. National Institutes of Health. National Institute of Mental Health (1-R03-MH069334-01).
Availability
Download
One or more files in this study are not available for download due to special restrictions; consult the study documentation to learn more on how to obtain the data.
Alternative Identifiers
  • 33242 (Type: ICPSR Study Number)
Publications
  • Emlet, Charles A.. Experience of stigma in older adults living with HIV/AIDS: A mixed-method analysis. AIDS Patient Care and STDs.21, (10), 740-752.2007.
    • ID: 10.1089/apc.2007.0010 (DOI)
  • Emlet, Charles A.. 'You're awfully old to have this disease': Experiences of stigma and ageism in adults 50 years and older living with HIV/AIDS. Gerontologist.46, (6), 781-790.2006.
    • ID: 10.1093/geront/46.6.781 (DOI)

Update Metadata: 2015-08-05 | Issue Number: 6 | Registration Date: 2015-06-16

Emlet, Charles A. (2013): HIV Stigma in a Population of Adults Age 50 and Over in the Pacific Northwest, 2003-2005. Version 1. Version: v1. ICPSR - Interuniversity Consortium for Political and Social Research. Dataset. https://doi.org/10.3886/ICPSR33242.v1