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HIV Open Data Project: eHARS - The HIV/AIDS Reporting System, Document Data

Version
v1
Resource Type
Dataset : administrative records data, clinical data
Creator
  • United States Department of Health and Human Services. Centers for Disease Control and Prevention
Other Title
  • Version 1 (Subtitle)
Publication Date
2013-07-08
Funding Reference
  • United States Department of Health and Human Services. Centers for Disease Control and Prevention
Language
English
Free Keywords
AIDS; birth records; child health; demographic characteristics; government performance; government regulation; health care; HIV; Medicaid; Medicare; medications; outreach programs; pregnancy; prenatal care; public assistance programs; risk factors; sexual behavior; tuberculosis; womens health care
Description
  • Abstract

    The Enhanced HIV/AIDS Reporting System (eHARS) is an application for collecting, storing, and retrieving the data the Centers for Disease Control and Prevention (CDC) has identified as necessary to: - monitor the HIV/AIDS epidemic - evaluate HIV prevention policies and programs Monitoring the HIV/AIDS epidemic relies heavily on reports of individual cases of HIV and/or AIDS. HIV/AIDS case surveillance and epidemiologic studies are essential in meeting federal, state, and local needs for targeting and allocating billions of dollars of federal resources, which are distributed based both on the number and characteristics of persons with HIV and/or AIDS. The data collected provide health departments with concrete information regarding the outcome of HIV prevention activities within their jurisdiction. eHARS encompasses core HIV/AIDS surveillance data activities and projects, and provides tools to assist in the following: - investigation of potential HIV/AIDS cases - management of current data - import and export of data - transfer of data to CDC - reporting - analysis eHARS gathers information from documents entered or imported into the system and links them to a particular person. Each person, or case, is assigned a system-generated identifier (ehars_uid), and each entered document for that case is linked by the eHARS UID. A system-generated identifier (document_uid) is also assigned to each document in the system, including the summary document (the Person View document) that eHARS automatically creates when the first document is entered for a person. eHARS maintains the Person View document for each case, regenerating the document and calculating certain values, such as diagnostic status, as new documents are added. eHARS uses a relational database to collect, store, and organize data. A relational database consists of tables linked by unique identifiers common to the tables. A case in eHARS consists of an identifier (typically, ehars_uid or document_uid) linking data stored in many tables. As new data are collected for a case, the case summary -- the Person View document -- is updated to reflect the current information, but historic data remain in their tables and available for review and analysis.
  • Methods

    ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection: Created variable labels and/or value labels.; Checked for undocumented or out-of-range codes..
  • Table of Contents

    Datasets:

    • DS1: Dataset
Temporal Coverage
  • Time period: 2013
  • Collection date: 2013
Geographic Coverage
  • United States
Sampled Universe
HIV/AIDS case surveillance data reported to CDC. Smallest Geographic Unit: Census tract
Collection Mode
  • coded on-site observation, mixed mode

Note
2013-10-03 Documentation is now being included for download with this study. Additionally, xml is being turned over for indexing within the SSVD. Funding insitution(s): United States Department of Health and Human Services. Centers for Disease Control and Prevention.
Availability
Download
This study is freely available to the general public via web download.
Alternative Identifiers
  • 34726 (Type: ICPSR Study Number)

Update Metadata: 2015-08-05 | Issue Number: 6 | Registration Date: 2015-06-16

United States Department of Health and Human Services. Centers for Disease Control and Prevention (2013): HIV Open Data Project: eHARS - The HIV/AIDS Reporting System, Document Data. Version 1. Version: v1. ICPSR - Interuniversity Consortium for Political and Social Research. Dataset. https://doi.org/10.3886/ICPSR34726.v1