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Project HealthDesign: BreathEasy - A Personal Health Record Application For Adults With Asthma, 2011-2012

Version
v0
Resource Type
Dataset : medical records, observational data
Creator
  • Flatley Brennan, Patricia (University of Wisconsin-Madison)
  • Massoudi, Barbara Leah (Research Triangle Institute)
  • Rothemich, Stephen F. (Virginia Commonwealth University. Department of Family Medicine)
Other Title
  • Archival Version (Subtitle)
Collective Title
  • Project HealthDesign Series
Publication Date
2015-05-29
Funding Reference
  • National Science Foundation
  • Robert Wood Johnson Foundation
Language
English
Free Keywords
asthma; depression (psychology); health care; heath informattion technology; observations of daily living; patient care
Description
  • Abstract

    Asthma is a chronic illness that affects more than 23 million adults in the United States. In addition to respiratory symptoms associated with the disease, individuals with asthma are also more likely to experience depression and anxiety. The BreathEasy team designed a mobile application built on the latest clinical guidelines for treatment and self-monitoring for patients with asthma. Patients with asthma used the application on smartphones to capture and report observations of daily living (ODLs) such as use of controller and rescue medications, asthma symptoms (including peak flow rates), depression and anxiety symptoms, encounters with asthma triggers, physical activity levels (including accelerometer based data), sleeping problems, and smoking. Clinicians used a web based dashboard with simple analysis and visualization tools that allowed them to quickly view the patients' data, evaluate their health statuses, and communicate changes in treatment or monitoring. This data collection contains the ODL data recorded by the patients.
  • Methods

    ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection: Created variable labels and/or value labels.; Checked for undocumented or out-of-range codes..
  • Table of Contents

    Datasets:

    • DS1: Dataset
Temporal Coverage
  • 2011 / 2012
    Time period: 2011--2012
  • 2011 / 2012
    Collection date: 2011--2012
Geographic Coverage
  • Richmond, Virgina
Sampled Universe
The project targeted persons with Asthma.
Sampling
A convenience sample of 30 patients with moderate to severe asthma was recruited at two primary care practices within the Virginia Commonwealth University Health System's Nelson Clinic and Hayes E. Willis Health Center. The 30 patients were predominantly black women. Each was given a smartphone and six months/phone data service. The patients entered ODL data at the time of day of their choice.
Collection Mode
  • BreathEasy was a project of Project HealthDesign, a national program of the Robert Wood Johnson Foundation designed to stimulate innovation in the development of person health records systems. Additional information about BreathEasy is available on the Project HealthDesign Web site.

    Additional support for data cleaning and depositing the data with ICPSR came from the Smart Asthma Management program funded by the National Science Foundation.

Note
Funding insitution(s): National Science Foundation (IIS-1343969). Robert Wood Johnson Foundation (67162).
Availability
Delivery
One or more files in this study are not available for download due to special restrictions; consult the study documentation to learn more on how to obtain the data.
Alternative Identifiers
  • 36027 (Type: ICPSR Study Number)
Relations
  • Is previous version of
    DOI: 10.3886/ICPSR36027.v1
Publications
  • Massoudi, Barbara L.. BreathEasy: A smartphone app to manage asthma in an underserved population. Journal of Mobile Technology in Medicine.1, (4S), 3-3.2012.
    • ID: 10.7309/jmtm.27 (DOI)

Update Metadata: 2015-08-05 | Issue Number: 6 | Registration Date: 2015-06-16

Flatley Brennan, Patricia; Massoudi, Barbara Leah; Rothemich, Stephen F. (2015): Project HealthDesign: BreathEasy - A Personal Health Record Application For Adults With Asthma, 2011-2012. Archival Version. Project HealthDesign Series. Version: v0. ICPSR - Interuniversity Consortium for Political and Social Research. Dataset. https://doi.org/10.3886/ICPSR36027