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Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001, Baseline and Follow-Up Data

Version
v1
Resource Type
Dataset : survey data
Creator
  • Schulz, Richard, et al. (University of Pittsburgh. University Center for Social and Urban Research)
Other Title
  • Version 1 (Subtitle)
Publication Date
2003-07-03
Funding Reference
  • United States Department of Health and Human Services. National Institutes of Health. National Institute on Aging
Language
English
Free Keywords
Alzheimers disease; caregiver burden; caregivers; dementia; emotional states; families; health services utilization; health status; home health care; intervention; mental disorders; mental health; minorities; older adults; outreach programs; psychological wellbeing; stress
Description
  • Abstract

    Resources for Enhancing Alzheimer's Caregiver Health (REACH) was established in 1995 to conduct social and behavioral research on interventions designed to enhance family caregiving, particularly in minority families, for persons with Alzheimer's Disease and related disorders. Baseline data (ICPSR 3253) were collected through randomized clinical trials at six sites: University of Alabama-Birmingham, The Research and Training Institute of the Hebrew Rehabilitation Center for Aged in Boston, University of Tennessee-Memphis, University of Miami, Veterans Affairs Palo Alto Health Care System and Stanford University, and Thomas Jefferson University in Philadelphia. Interventions such as psychoeducational support groups, behavioral skills training programs, family-based systems interventions, environmental modifications, and technological computer-based information and communication services varied by site. This collection contains baseline data along with follow-up data at 6-, 12-, and 18-month intervals from each site with focus on the impact of the various intervention strategies on psychological distress, health status, health practices, and health care utilization. Also included are follow-up batteries, transition batteries (placement, bereavement, discontinued), and data reporting missed visits. Parts 1 through 5 contain screening data and responses to a short mental status questionnaire. Parts 6 through 34 contain baseline data along with follow-up data at 6, 12, and 18-month intervals and cover activities of daily living, anxiety, and caregiver health and health behaviors along with sociodemographic information. Also included are care recipient medications and sociodemographic information. Parts 35 through 40 contain tracking data and also include an examination of interventions.
  • Methods

    ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection: Created online analysis version with question text..
  • Table of Contents

    Datasets:

    • DS0: Study-Level Files
    • DS1: Screening Log Sheet
    • DS2: Screening
    • DS3: Rescreen
    • DS4: Repeat Screen
    • DS5: Short Portable Mental Status Questionnaire
    • DS6: ADL/IADL
    • DS7: Anxiety Inventory
    • DS8: Bereavement Form
    • DS9: Bereavement--Religiosity
    • DS10: Bereavement--Sociodemographic
    • DS11: Caregiver Health and Health Behaviors
    • DS12: Core Quality Form
    • DS13: Intervention Delivery Assessment
    • DS14: Formal Care and Services
    • DS15: Caregiver Medications
    • DS16: Caregiver Sociodemographic Information
    • DS17: Identification Number
    • DS18: Interview Time
    • DS19: Revised Memory and Behavior Checklist
    • DS20: Mini Mental State Examination
    • DS21: Positive Aspects of Caregiving
    • DS22: Placement Form
    • DS23: Placement--Sociodemographic
    • DS24: Religiosity
    • DS25: Care Recipient Medications
    • DS26: Care Recipient Sociodemographic Information
    • DS27: Social Activities
    • DS28: Bereavement--Social Support
    • DS29: Center for Epidemiologic Studies--Depression
    • DS30: Social Support
    • DS31: Follow-Up--Sociodemographic
    • DS32: Follow-Up--Religiosity
    • DS33: Transition--Formal Care Services
    • DS34: Vigilance
    • DS35: Care Recipient Tracking
    • DS36: Discontinued Data
    • DS37: Intervention Assignment
    • DS38: Interventionist Characteristics
    • DS39: Off Protocol
    • DS40: Project Evaluation
Temporal Coverage
  • 1996-09 / 2001-02
    Time period: 1996-09--2001-02
  • 1996-09 / 2001-02
    Collection date: 1996-09--2001-02
Geographic Coverage
  • Alabama
  • Birmingham
  • Boston
  • California
  • Florida
  • Massachusetts
  • Memphis
  • Miami
  • Palo Alto
  • Pennsylvania
  • Philadelphia
  • Tennessee
  • United States
Sampled Universe
Family caregivers living with persons with dementia for at least six months in Birmingham, AL, Boston, MA, Memphis, TN, Miami, FL, Palo Alto, CA, and Philadelphia, PA.
Sampling
Convenience sample with recruitment strategies varying at each site.
Note
2006-09-26 Value labels have been added.2006-03-30 File CB3678.ALL.PDF was removed from any previous datasets and flagged as a study-level file, so that it will accompany all downloads.2005-11-04 On 2005-03-14 new files were added to one or more datasets. These files included additional setup files as well as one or more of the following: SAS program, SAS transport, SPSS portable, and Stata system files. The metadata record was revised 2005-11-04 to reflect these additions. Funding insitution(s): United States Department of Health and Human Services. National Institutes of Health. National Institute on Aging.
Availability
Delivery
This version of the study is no longer available on the web. If you need to acquire this version of the data, you have to contact ICPSR User Support (help@icpsr.umich.edu).
Alternative Identifiers
  • 3678 (Type: ICPSR Study Number)
Relations
  • Is previous version of
    DOI: 10.3886/ICPSR03678.v2
Publications
  • Koons, Dawn. The Impact of Spiritual Coping on Depression for Caregivers of Patients Diagnosed with Alzheimer's Disease. Dissertation, Walden University. 2012.
  • Bergman, Elizabeth J., Haley, William E. Small, Brent J.. Who uses bereavement services? An examination of service use by bereaved dementia caregivers. Aging and Mental Health.15, (4), 531-540.2011.
    • ID: 10.1080/13607863.2010.543661 (DOI)
  • Roth, David L., Ackerman, Michelle L., Okonkwo, Ozioma C., Burgio, Louis D.. The four-factor model of depressive symptoms in dementia caregivers: A structural equation model of ethnic differences. Psychology and Aging.23, (3), 567-576.2008.
    • ID: 10.1037/a0013287 (DOI)
  • Lee, Mi Jin. The effects of REACH interventions on longitudinal changes of negative and positive caregiver outcomes. Dissertation, Washington University in St. Louis. 2005.
  • Pinquart, Martin, Sorensen, Silvia. Ethnic Differences in Stressors, Resources, and Psychological Outcomes of Family Caregiving: A Meta-Analysis. Gerontologist.45, (1), 90-106.2005.
    • ID: 10.1093/geront/45.1.90 (DOI)
  • Coon, David W., Schulz, Richard, Ory, Marcia G.. Innovative intervention approaches with Alzheimer's Disease Caregivers. Innovations in Practice and Service Delivery Across the Lifespan.New York, NY: Oxford University Press. 1999.

Update Metadata: 2015-08-05 | Issue Number: 3 | Registration Date: 2015-06-30

Schulz, Richard, et al. (2003): Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001, Baseline and Follow-Up Data. Version 1. Version: v1. ICPSR - Interuniversity Consortium for Political and Social Research. Dataset. https://doi.org/10.3886/ICPSR03678.v1