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Opinions and Attitudes towards Organ and Tissue Donation 2016

Version
1.0.0
Resource Type
Dataset
Creator
  • Bundeszentrale für gesundheitliche Aufklärung (BZgA), Köln
Publication Date
2017-06-30
Contributor
  • forsa. Gesellschaft für Sozialforschung und statistische Analysen, Berlin (Data Collector)
Language
German
Classification
  • ZA:
    • Medicine
  • CESSDA Topic Classification:
    • Health care and medical treatment
    • Specific diseases and medical conditions
Description
  • Abstract

    Knowledge, information and attitudes about organ and tissue donation. Dealing with the topic of organ donation in the family and circle of friends. Experiences with organ and tissue donation. Topics: 1. Trust in the German health system. 2. Knowledge and attitudes towards organ and tissue donation: Determination of the willingness to donate (by entry in a donation register, completion of an organ donation card, notification of the decision to the relatives, notification to the family doctor, notification to the health insurance company, by a living will); knowledge of the contents of the organ donation card (consent to the removal of organs without exception, exclusion of certain organs from the donation, only removal of certain organs, general objection to the removal of organs or tissue, certain person should decide on the removal of organs); withdrawal of the decision to donate organs and tissue; other donation behaviour: respondent has donated blood himself; blood donation once or more often; entry in the bone marrow donor database; generally rather positive or rather negative opinion on organ and tissue donation; willingness to donate organs after death; willingness to accept a donated organ. Documentation of the willingness to donate organs in the organ donor card: possession of an organ donation card; personal statement of intention on the organ donation card (consent to organ removal, objection or designation of a person to take a decision); consent to the removal of organs and tissues without restriction, except for certain organs and tissues or only for certain organs and tissues; organs and tissues excluded from donation, as well as organs and tissues the removal of which has been approved (heart, lungs, liver, kidneys, pancreas, intestines, heart valves, cornea (of the eyes), blood, bone, organs only, no tissues, tissues only, no organs, other, open mentions); personal reasons for consenting to organ donation in the organ donor card (helping others (altruism), own organs are no longer needed, reciprocity, people affected among friends who could be helped with organ donation, relevance of organ donation known from the professional environment, great need, long waiting lists, science and research, religious, ethical, spiritual reasons, organ donation meaningful, functioning organ donation system, relatives should not be burdened with decision, other, open mentions); personal reasons why organ donation was objected to (too old, too young, for health reasons, fear of abuse / lack of trust, fear of organ trafficking, negative media coverage, fear of inadequate medical care, fear or uncertainty regarding the determination of brain death, fear of disfigurement of the body, organs removed from living persons, fear of pain, generally against organ donation, religious, ethical, spiritual reasons, general insecurity/ scepticism/ anxiety, generally against life-prolonging measures, experiences and knowledge from professional or social life, other, open mentions); intention to obtain and complete an organ donor card within the next 12 months; personal reasons against an organ donor card (too old, too young, for health reasons, uncertainty about suitability as a donor, not relevant, undecided, not yet or not enough involved, comfort or carelessness, avoidance of the issue, fear of abuse / lack of trust, fear of organ trafficking, negative media coverage, fear of inadequate medical care, fear or uncertainty with regard to the determination of brain death, fear of disfigurement of the body, fear of pain during organ removal, rejection of organ donation, rejection of life-prolonging measures, general uncertainty/ scepticism/ anxiety, personal bad experiences, religious, ethical, spiritual reasons, relatives/ friends/ acquaintances know personal attitude, living will, decision set out in another document, lost organ donor card, ignorance of documentation possibilities, no time or opportunity to obtain an organ donor card, no organ donor card received, missing information, no special reason, other, open mentions); person who is to decide on organ or tissue donation in the event of death (spouse, partner, relatives, friends, doctor, clergyman, other open mentions); reasons why other person should decide on organ donation (trust, cannot decide, person has medical expertise, should ensure death, will decide correctly, reciprocity, other, open mentions); source of supply for organ donation card (e.g. Bundeszentrale für gesundheitliche Aufklärung, health insurance company or health insurance, action of the Apothekenumschau, pharmacist, doctor, hospital, self-help associations, German foundation organ transplantation, information stand, newspaper/ magazine, website in the Internet, etc., open mentions); time when the organ donation card was sent by the health insurance company or health insurance; website on the Internet where the organ donation card was obtained (Organspende-info.de, organpaten.de, bmg.bund.de, other, open mentions). Documentation of the willingness to donate organs in the living will: possession of a living will; statement in the living will about organ and tissue donation; consent to organ removal in the living will; open mentions of consent; consent to complete organ removal in the living will; organs and tissues excluded from donation in the living will and organs and tissues whose removal has been agreed; reasons for consenting to organ donation in the living will; reasons why organ donation was objected to in the living will. Non-documented or alternatively documented decisions on organ and tissue donation (respondents who do not have an organ donor card or a living will with comments on organ donation): decision on organ readiness to donate already taken; reasons why no decision was taken; basic consent to organ and tissue donation; complete consent to organ removal; organs and tissues excluded from donation as well as organs and tissues whose removal is approved; personal reasons for consent to organ donation; personal reasons why organ donation is objected to; own decision on organ donation recorded in writing or not documented; place for recorded decision; reasons why decision on organ donation was not recorded in writing; reasons for positive or negative attitude towards organ donation; change of opinion on organ and tissue donation; frequency of change of opinion; reasons for this change of opinion (too old, health reasons, lack of confidence, fear of organ trafficking, media coverage, changed information situation, personal experience, insight that organ donation is meaningful, just like that, fear of organ removal, other, open mentions); change of opinion towards consent to organ and tissue removal, refusal or determination of which organs and tissue may be removed or which tissue may be removed; or are excluded from the donation; own decision communicated to someone; person who was informed of the decision; reasons why the decision was not communicated to anyone (not relevant, too little involved, convenience, unpleasant topic, topic not yet discussed, decision is a private matter, no suitable contact person, does not want to burden anyone with it, divergent opinions in the social environment, not necessary, as decision documents, relatives or friends know attitude, refusal of the organ donation, for health reasons, too old, no special reason, other, open denominations); agreement to the removal of organs of family members with unclear decision of the deceased. 3. Dealing with the topic of organ donation in the family and circle of friends: discussions with family and friends about organ and tissue donation; preferred contacts about organ and tissue donation; marital status; living together with a partner; partner has an organ donation card; partner´s attitude towards organ donation; people in the social environment have informed about their decision to donate organs and tissue; persons who have communicated their decision (spouse, partner, relatives, friends, colleagues, other, open mentions); partner´s decision for or against organ and tissue donation; rather positive or negative attitude of relatives and friends towards organ and tissue donation; self-assessment of informativeness about organ and tissue donation; have already dealt with one´ s own death. 4. Knowledge of the legal regulations and medical knowledge questions: tissues that can be donated (cornea (of the eyes), skin, bone tissue, cartilage, heart valves, blood vessels, tendons, ligaments and connective tissue, amniotic tissue, blood/ blood plasma, muscle/ muscle tissue, spinal marrow/ bone marrow/ stem cells, mucous membranes, hair/hair roots, everything, mention of organs, other, open mentions); reasons against donor suitability (illness, HIV/AIDS, cancer, too old, too young, taking medication, addictions, unhealthy lifestyle, religious, moral, ethical reasons, lack of trust, uncertainty about the determination of death, generally in the case of damaged organs, compatibility of blood group, circumstances of death, lack of information, refusal of organ donation, anxiety or uncertainty in general, other, open mentions); age limit for organ and tissue removal; definition of the term brain death; organ donation to specific persons; organ donation from living persons (living donation); organs eligible for living donation; opinion on living organ donation; willingness to donate living organs to a close person; mediation of organs removed in Germany (to persons living in Germany, worldwide or within the European association Eurotransplant); criterion for possible organ and tissue removal (presence of cardiac death, brain death or coma); reawakening of a brain-dead person; pain sensation of a brain-dead person; available quantity of organs and tissue in Germany; personal definition of brain death as the final death of a human being; fair distribution of donor organs in Germany; legal regulation of organ and tissue donation in Germany; regulation on organ and tissue removal in Germany (consent of the donor, consent of relatives in the absence of a personal decision, automatic organ and tissue donor in the absence of an objection, general registration of decisions on organ and tissue donation); preferred regulation (automatic versus donor only after prior consent); organ and tissue trade in Germany; willingness to store the personal decision to donate organs and tissues on the health card; trust in doctors that life-saving is possible before receiving donated organs; knowledge of irregularities in organ allocation; negative effects of these incidents on trust in the German organ donation system. 5. Being informed about the issue of organ and tissue donation and the need for information: information sources on organ donation in the last six months (magazines, posters, Internet, cinema, television, radio and brochures/ flyers); websites visited on organ donation (www.organspende-info.de, www.organpaten.de, www.dso.de); awareness of contact persons for organ and tissue donation (Bundeszentrale für gesundheitliche Aufklärung (BZgA), Deutsche Stiftung Organtransplantation (DSO), Stiftung ´Fürs Leben´, Transplantation centre, self-help associations, German Society for Tissue Transplantation (DGFG), doctor, pharmacies, DRK, DKMS, Eurotransplant, hospital, health insurances, media, other authorities, research, other, none known, open mentions); awareness of slogans on the subject of organ and tissue donation (organ donation gives life, for life, be future, your organ can save lives, become an organ sponsor, right, important, vital, that´s what you wear today: the organ donor card, I decide, My card, My decision, Chopsticks pure, Be a donor, Born on...., reborn on..., organ donation saves lives, others, no slogan known, open mentions); sufficient information or desire for further information. Demography: sex; age; highest school or university degree; gainful employment or employment situation; work in health care; occupation in health care; German citizenship, citizenship of another EU country or a non-EU country; will; net household income; household size; number of persons in the household aged 14 to 75 and children under 18; number of telephone numbers at home; denomination. Additionally coded: respondent ID; weighting factors; region; federal state; city size (political community size class); knowledge status survey: total knowledge score, scoredimension decision and scoredimension donation (in points and in categories); cumulated documented decisions in the organ donation card or in the living will (and which decisions); cumulated documented and undocumented decisions (and which decisions); interview date; interview start; length of the respective question blocks 1 to 6 in seconds; total length of the interview in seconds; interruption of the interview.
Temporal Coverage
  • 2016-01-05 / 2016-02-26
Geographic Coverage
  • Germany (DE)
Sampled Universe
German speaking persons aged between 14 and 75 years in private households
Sampling
Probability Sample: Multistage Sample
Collection Mode
  • Telephone interview: CATI (Computer Assisted Telephone Interview)
Data and File Information
  • Number of Variables: 696
Note
The survey is designed as a replication study of the surveys conducted in 2010 (ZA6671), 2012 (ZA6672), 2013 (ZA5176) and 2014 (ZA6673).
Availability
Download
A - Data and documents are released for academic research and teaching.
Rights
All metadata from GESIS DBK are available free of restriction under the Creative Commons CC0 1.0 Universal Public Domain Dedication. However, GESIS requests that you actively acknowledge and give attribution to all metadata sources, such as the data providers and any data aggregators, including GESIS. For further information see https://dbk.gesis.org/dbksearch/guidelines.asp
Alternative Identifiers
  • ZA6674 (Type: ZA-No.)
  • BZgA (Type: FDZ)

Update Metadata: 2019-10-31 | Issue Number: 5 | Registration Date: 2017-07-18

Bundeszentrale für gesundheitliche Aufklärung (BZgA), Köln (2017): Wissen, Einstellung und Verhalten der Allgemeinbevölkerung zur Organ- und Gewebespende 2016. Version: 1.0.0. GESIS Datenarchiv. Dataset. https://doi.org/10.4232/1.12802