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Opinions and Attitudes towards Organ and Tissue Donation - Time Series

Version
1.0.0
Resource Type
Dataset
Creator
  • Bundeszentrale für gesundheitliche Aufklärung (BZgA), Köln
Publication Date
2017-06-30
Contributor
  • Kantar Health, München (2010) forsa. Gesellschaft für Sozialforschung und statistische Analysen, Berlin (from 2012) (Data Collector)
Language
German
Classification
  • ZA:
    • Medicine
  • CESSDA Topic Classification:
    • Health care and medical treatment
    • Specific diseases and medical conditions
Description
  • Abstract

    Knowledge, information and attitudes about organ and tissue donation. Dealing with the topic of organ donation in the family and circle of friends. Experiences with organ and tissue donation. Topics: 1. Satisfaction with one´s own state of health; personal health behaviour; trust in the German health system. 2. Knowledge of the legal regulations and medical knowledge questions with regard to organ and tissue donation: determination of the willingness to donate (by entry in a donation register, completion of an organ donation card, notification of the decision to the relatives, notification to the family doctor, notification to the health insurance company, by a living will); regulation of organ and tissue donation in Germany by law or by the responsible transplantation centres; restriction of organ and tissue removal; withdrawal of the decision to donate organs and tissue; age limit for organ and tissue removal (from 2013: top); procurement of organs removed in Germany (to persons living in Germany, worldwide or by Eurotransplant to the countries belonging to the network); departure from the deceased person after organ and tissue removal; criterion for possible organ and tissue removal (presence of cardiac death, brain death or coma); definition of brain death; quantity of organs and tissue available in Germany; probability of life 5 years after kidney transplantation; organ and tissue trade in Germany; organ donation from living persons (living donation); organ donation to certain persons; regulation on organ and tissue removal in Germany (consent of the donor, consent of relatives in the absence of a personal decision, automatic organ and tissue donor in the absence of a contradiction, no regulation); normal life possible for brain-dead persons. 3. Being informed about organ and tissue donation; information sources on organ donation in the last six months (magazines, posters, internet, cinema, television, radio and brochures); visited websites on organ donation (www.organspende-info.de, www.organpaten.de, www.dso.de); self-assessment of information on organ donation; awareness of contacts on organ and tissue donation (Bundeszentrale für gesundheitliche Aufklärung (BZgA), Deutsche Stiftung Organtransplantation (DSO), Stiftung ´Fürs Leben´, Transplantationszentrum, Selbsthilfeverbände, Deutsche Gesellschaft für Gewebetransplantation (DGFG), others, none known); awareness of slogans about organ and tissue donation (Organspende schenkt Leben, Fürs Leben, Sei Zukunft (2010), Dein Organ kann Leben retten (2010), Organpate werden (ab 2012), Richtig, Wichtig, Lebenswichtig (ab 2012), Das trägt man heute (2013), Das trägt man heute: den Organspendeausweis, Ich entscheide (ab 2014), Mein Ausweis, meine Entscheidung (ab 2016), other, no slogan known). 4. Attitude towards organ and tissue donation and willingness to donate: rather approval or rejection of organ and tissue donation according to previous information; assessment of the willingness to donate organs in Germany; generally rather positive or rather negative opinion on organ and tissue donation; personal willingness to donate organs after death; willingness to accept a donated organ; possession of an organ donation card; knowledge of the contents of the organ donation card (consent to the removal of organs without exception, exclusion of certain organs from donation, only removal of certain organs, general objection to the removal of organs or tissue, certain person to decide on the removal of organs); personal statement of intention on the organ donation card (consent to the removal of organs, objection or designation of a person to take the decision); consent to the removal of organs and tissue without restriction, with the exception of certain organs and tissue, only for certain organs and tissue; intention to obtain and complete an organ donor card; certainty of this intention for the next 12 months; awareness of sources of supply for the organ donor card (Federal Centre for Health Education, health insurance company, action of the Apothekenumschau, pharmacist, doctor, hospital, self-help associations, German Foundation for Organ Transplantation, information desk, newspaper/ magazine); personal motivation for possession of an organ donor card (helping others (altruism), people affected in the circle of friends who could be helped with organ donation, relevance of organ donations known from the professional environment, even happy to receive an organ in case of illness, relatives should not be burdened with decision, religious motives, no matter what happens to one´s own body after death, expectation of the family, gives meaning to death, exercise of rights based on information, pride, other); personal reasons against organ donation (no discussion of the subject of death, fear of inadequate medical care when presenting an organ donation card, no time, ignorance of sources of supply, too sick or old, religious motives, does not want to get an organ, does not want to donate an organ or tissue, currently no decision possible, fear of abuse by organ trafficking, disfigured body by organ and tissue donation, fear of organ removal before death, disturbed rest in death, feeling pressurized by discussions, fear of being determined by decision forever, brain death not the death of man, recipient may not deserve organ donation, no fair distribution, nothing of it, anything else); contact person on the subject of organ and tissue donation (spouse, partner, family member, friends, doctor, pharmacist, clergyman, expert in a counseling center, information phone organ donation). 5. Dealing with the topic of organ donation within the family and friends: talking to family and friends about organ and tissue donation; informing family and friends about the personal decision regarding organ donation; family members or friends who have completed an organ donation card; family members or friends informed about their decision regarding organ and tissue donation; assessing the willingness to donate in the social environment. 6. Dealing with death (personal, conversations with family or friends, will, expectation of doctors to be approached for organ and tissue donation after the brain death of a relative, nothing else); living will: possession of a living will; statement on organ and tissue donation in the living will. 7. Experience with organ and tissue donation: personal involvement or through cases in the social environment (organ donor or organ recipient in the family or circle of friends or person waiting for an organ or tissue, respondent himself has received an organ or tissue or is waiting for an organ or tissue); successful transplantation; change of opinion on organ and tissue donation; change of opinion in the direction of consent to organ and tissue removal, rejection or determination of which organs and tissue may be removed or which organs and tissue are excluded from organ donation; interest in information on organ and tissue donation; preferred type of information requested (factual information, testimonials of affected persons, combination of factual information and testimonials); assessment of the objection system and consent system for organ and tissue donation; preference for objection system or consent system. Demography: sex; age; year of birth; highest school or university degree; marital status; cohabitation with a partner; household size; number of children in the household under 18; religious community. Additionally coded was: respondent ID; survey year; weight; level of knowledge and information (total and points).
Temporal Coverage
  • 2010-06-22 / 2010-08-02
  • 2012-07-11 / 2012-09-13
  • 2013-08-05 / 2013-09-14
  • 2014-07-14 / 2014-09-02
  • 2016-01-05 / 2016-02-26
Geographic Coverage
  • Germany (DE)
Sampled Universe
14- to 75-year-old resident population with sufficient knowledge of the German language
Sampling
Probability Sample: Multistage Sample
Collection Mode
  • Telephone interview: CATI (Computer Assisted Telephone Interview)
Data and File Information
  • Number of Variables: 184
Note
This study presents a time series of the surveys from 2010 (ZA6671), 2012 (ZA6672), 2013 (ZA5176), 2014 (ZA6673) and 2016 (ZA6674). The report of the Federal Centre for Health Education (BZgA) for the survey year 2016 uses the data of this time series where survey results could be compared on the basis of uniform questions. This report has been archived together with the study ´Meinungen and Einstellungen zur Organ- und Gewebespende 2016´ (ZA6674) and can be downloaded there if required.
Availability
Download
A - Data and documents are released for academic research and teaching.
Rights
All metadata from GESIS DBK are available free of restriction under the Creative Commons CC0 1.0 Universal Public Domain Dedication. However, GESIS requests that you actively acknowledge and give attribution to all metadata sources, such as the data providers and any data aggregators, including GESIS. For further information see https://dbk.gesis.org/dbksearch/guidelines.asp
Alternative Identifiers
  • ZA6675 (Type: ZA-No.)
  • BZgA (Type: FDZ)

Update Metadata: 2019-03-14 | Issue Number: 4 | Registration Date: 2017-07-18

Bundeszentrale für gesundheitliche Aufklärung (BZgA), Köln (2017): Wissen, Einstellung und Verhalten der Allgemeinbevölkerung zur Organ- und Gewebespende, Zeitreihe 2010-2016. Version: 1.0.0. GESIS Datenarchiv. Dataset. https://doi.org/10.4232/1.12803