My da|ra Login

Detailed view

metadata language: English

Survey of Direct-to-Consumer Genetics Testing Customers and Third-party Interpretation Tools

Version
3
Resource Type
Dataset : survey data
Creator
  • Nelson, Sarah (University of Washington-Seattle)
Publication Date
2019-01-01
Description
  • Abstract

    Direct-to-consumer (DTC) genetic testing customers were recruited from various social media venues (see README.html for details) and surveyed about their access and use of their raw genetic data in third-party interpretation tools.
Temporal Coverage
  • 2017-10-17 / 2018-11-25
    Collection Date(s): Tue Oct 17 00:00:00 EDT 2017--Sun Nov 25 00:00:00 EST 2018 (Autumn 2017)
Sampling
Convenience sample
Collection Mode
  • web-based survey~~

Availability
Download
Relations
  • Cites
    DOI: 10.1016/j.ajhg.2019.05.014 (Text)
  • Cites
    URL: http://hdl.handle.net/1773/43449 (Text)
Publications
  • Nelson, Sarah C., Deborah J. Bowen, and Stephanie M. Fullerton. “Third-Party Genetic Interpretation Tools: A Mixed-Methods Study of Consumer Motivation and Behavior.” The American Journal of Human Genetics 105, no. 1 (July 2019): 122–31. https://doi.org/10.1016/j.ajhg.2019.05.014.
    • ID: 10.1016/j.ajhg.2019.05.014 (DOI)
  • Nelson, Sarah Catherine. “Third-Party Interpretation of Personal Genetic Data: The Tools, Users, and Implications for Policymaking.” University of Washington, 2019. http://hdl.handle.net/1773/43449.
    • ID: http://hdl.handle.net/1773/43449 (URL)

Update Metadata: 2020-01-31 | Issue Number: 1 | Registration Date: 2020-01-31

Nelson, Sarah (2019): Survey of Direct-to-Consumer Genetics Testing Customers and Third-party Interpretation Tools. Version: 3. ICPSR - Interuniversity Consortium for Political and Social Research. Dataset. https://doi.org/10.3886/E105721V3-22085