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Opinions and Attitudes towards Organ and Tissue Donation 2018

Version
1.0.0
Resource Type
Dataset
Creator
  • Caille-Brillet, Anne-Laure (Bundeszentrale für gesundheitliche Aufklärung (BZgA), Köln)
  • Thaiss, Heidrun M. (Bundeszentrale für gesundheitliche Aufklärung (BZgA), Köln)
  • Zimmering, Rebecca (Bundeszentrale für gesundheitliche Aufklärung (BZgA), Köln)
Publication Date
2019-10-28
Contributor
  • forsa. Gesellschaft für Sozialforschung und statistische Analysen, Berlin (Data Collector)
Language
German
Classification
  • ZA:
    • Medicine
  • CESSDA Topic Classification:
    • Health care and medical treatment
    • Specific diseases and medical conditions
Description
  • Abstract

    Knowledge, information and attitudes about organ and tissue donation. Dealing with the topic of organ donation in the family and circle of friends. Experiences with organ and tissue donation. Topics: 1. Trust in the German health system. 2. Knowledge and attitudes towards organ and tissue donation: determination of the willingness to donate (by entry in a donation register, completion of an organ donation card, notification of the decision to the relatives, notification to the family doctor, notification to the health insurance company, by a living will); knowledge of the contents of the organ donation card (consent to the removal of organs without exception, exclusion of certain organs from the donation, only removal of certain organs, general objection to the removal of organs or tissue, certain person should decide on the removal of organs); withdrawal of the decision to donate organs and tissue; other donation behaviour: respondent has already donated blood; has donated blood in the last 12 months; personal reasons against blood donation; registered bone marrow donor or stem cell donor; generally rather positive or rather negative opinion on organ and tissue donation; own willingness to donate organs after death; willingness to accept a donated organ. Documentation of the willingness to donate organs in the organ donor card: possession of an organ donation card; personal statement of intention on the organ donation card (consent to organ removal, objection or designation of a person to take a decision); consent to the removal of organs and tissues without restriction, except for certain organs and tissues or only for certain organs and tissues; organs and tissues excluded from donation, as well as organs and tissues whose removal has been approved (heart, lungs, liver, kidneys, pancreas, intestines, heart valves, cornea of the eyes, eyes, skin, bones, only organs, no tissue, only tissues, no organs, cartilage, blood vessels, tendons, ligaments, fasciae, amniotic sac membranes, other, open mentions); personal reasons for consenting to organ donation in the organ donor card (altruism, own organs are no longer needed, reciprocity, family members and friends affected who could be helped with organ donation, relevance of organ donations known from the professional environment, great need, long waiting lists, science or research, religious, ethical, spiritual reasons, organ donation meaningful, functioning organ donation system, relatives should not be burdened with decision, other, open mentions); personal reasons why the organ donation was objected to (too old, too young, for health reasons, fear of abuse / lack of trust, fear of organ trade, negative media coverage, fear of inadequate medical care, fear or uncertainty regarding the determination of brain death, fear of disfigurement of the body, organs removed from living persons, fear of pain, generally against organ donation, religious, ethical, spiritual reasons, general insecurity/ scepticism/ anxiety, generally against life-prolonging measures, experiences and knowledge from professional or social life, other, open mentions); intention to obtain and complete an organ donor card within the next 12 months; personal reasons against an organ donor card (too old, too young, for health reasons, uncertainty about suitability as a donor, not relevant, undecided, not yet or not enough concerned with it, comfort or carelessness, avoidance of the subject, fear of misuse/ lack of trust, fear of organ trafficking, negative media coverage, fear of inadequate medical care, uncertainty with regard to the determination of brain death, fear of disfigurement of the body, fear of pain during organ removal, rejection of organ donation, rejection of life-prolonging measures, general uncertainty/ scepticism anxiety, personal bad experiences, religious, ethical, spiritual reasons, relatives/ friends/ acquaintances know personal attitude, living will, decision set out in another document, lost organ donor card, ignorance of documentation possibilities, no time or opportunity to obtain an organ donor card, no organ donor card received, missing information, no special reason, other, open mentions); person who is to decide on organ or tissue donation in the event of death (spouse, partner, relatives, friends, doctor, clergyman, other, open mentions); reasons why other person should decide on organ donation (trust, cannot decide, person has medical expertise, should ensure death, will decide correctly, reciprocity, other, open mentions); source of supply for organ donation card (e.g. Bundeszentrale für gesundheitliche Aufklärung, health insurance, action of the Apothekenumschau, pharmacist, doctor, hospital, self-help associations, German Foundation Organ Transplantation, information stand, newspaper/ magazine, website on the Internet, etc., open mentions); time when the organ donation card was sent by the health insurance company or health insurance; website on the Internet where the organ donation card was obtained (Organspende-info.de, organpaten.de, bmg.bund.de, other, open mentions). Documentation of the willingness to donate organs in the living will: possession of a living will; statement on organ and tissue donation in the living will; consent to organ removal in the living will; open mentions of consent; consent to complete organ removal in the living will; organs and tissues excluded from donation in the living will and organs and tissues whose removal was consent; reasons for consent to organ donation in the living will; reasons why organ donation was rejected in the living will. Undocumented or alternatively documented decisions on organ and tissue donation (respondents who do not have an organ donor card or a living will with comments on organ donation): decision on organ readiness to donate already taken; reasons why no decision was taken; basic consent to organ and tissue donation; complete consent to organ removal; organs and tissues excluded from donation and organs and tissues whose removal is approved; personal reasons for consenting to organ donation; personal reasons for refusing organ donation; reasons why the decision on organ donation was not recorded in writing; change of opinion on organ and tissue donation; frequency of change of opinion; change of opinion towards consent to organ and tissue removal; refusal or determination of which organs and tissues may be removed or are excluded from the donation; reasons for the now given consent to the organ donation, the rejection of the organ donation or the determination of which organs are to be donated; own decision communicated to someone; person who was informed of the decision; reasons why the decision was not communicated to anyone (not relevant, too little involved, convenience, unpleasant subject, subject has not yet come up, decision is private matter, no suitable contact person, does not want to burden anyone with it, dissenting opinions in the social environment, not necessary, since decision documents, relatives or friends know attitude, refusal of the organ donation, for health reasons, too old, no special reason, other, open denominations); agreement to the removal of organs of family members with unclear decision of the deceased. 3. Dealing with the topic of organ donation in the family and circle of friends: discussions with family and friends about organ and tissue donation; preferred contact persons about organ and tissue donation; people in the social environment have informed about their decision to donate organs and tissue; people who have communicated their decision (spouse, partner, relatives, friends, colleagues, other, open mentions); decision of close persons for or against organ and tissue donation; majority decision of these persons for or against organ donation; rather positive or negative attitude of relatives and friends towards organ and tissue donation; self-assessment of information about organ and tissue donation; already dealt with own death. 4. Knowledge of legal requirements and medical knowledge: tissues that can be donated (corneas of the eyes, eyes, skin, bone tissue, cartilage, heart valves, blood vessels, tendons, ligaments and fasciae, amniotic sac membranes, blood/ blood plasma, muscle/ muscular tissue, spinal cord/ bone marrow/ stem cells, mucous membranes, hair/ hair roots, everything, mention of organs, other, open mentions); reasons against donor suitability (illness, HIV/AIDS, cancer, too old, too young, taking medication, addictions, unhealthy lifestyle, religious, moral, ethical reasons, fear of abuse or lack of trust, uncertainty about the determination of death, generally in the case of damaged organs, tolerance of the blood group or of organs and tissue, circumstances of death, lack of information, refusal of organ donation, anxiety or fear, uncertainty in general, other, open mentions); age limit for organ and tissue removal; definition of the term brain death; organ donation to certain persons; organ donation from living persons (living donation); organs eligible for living donation; opinion on living organ donation; willingness to donate living organs to a close person; mediation of organs removed in Germany (to persons living in Germany, worldwide or within the European association Eurotransplant); criterion for possible organ and tissue removal (presence of cardiac death, brain death or coma); reawakening of a brain-dead person; pain sensation of a brain-dead person; available quantity of organs and tissue in Germany; personal definition of brain death as the final death of a human being; fair distribution of donor organs in Germany; legal regulation of organ and tissue donation in Germany; regulation on organ and tissue removal in Germany (consent of the donor, consent of relatives in the absence of a personal decision, automatic organ and tissue donor in the absence of an objection, general registration of decisions on organ and tissue donation); organ and tissue trade in Germany; willingness to store personal decisions on organ and tissue donation on the health card; trust in doctors to save lives before receiving donated organs; knowledge of irregularities in organ allocation; negative effects of these incidents on trust in the German organ donation system. 5. Being informed about the issue of organ and tissue donation and the need for information: information sources on organ donation in the last six months (magazines, posters, Internet, cinema, television, radio and brochures/ flyers); websites visited on organ donation (www.organspende-info.de, www.organpaten.de, www.dso.de); awareness of contact persons for organ and tissue donation (Bundeszentrale für gesundheitliche Aufklärung (BZgA), Deutsche Stiftung Organtransplantation (DSO), Stiftung ´Fürs Leben´, transplantation centre, self-help associations, Deutsche Gesellschaft für Gewebetransplantation (DGFG), doctor, pharmacies, DRK, DKMS, Eurotransplant, hospital, health insurance companies, media, other authorities, research, other, none known, open entries); awareness of the info telephone organ donation; info telephone organ donation already once used; awareness of slogans to the topic organ and tissue donation (organ donation gives life, for life, be future, your organ can save lives, become organ sponsor, correct, important, vital, one carries that today: the organ donor card, I decide, My card, My decision, No matter how you carry it..., chopsticks pure, be a donor, Born on...., reborn on..., organ donation saves lives, others, no slogan known, open mentions); sufficient information or desire for further information. Demography: sex; age; marital status; household size; household composition: number of persons in the household aged 14 to 75 and children under 18; highest school or university degree; desired school degree; gainful employment or employment situation; work in the health service; occupation in the health service; German citizenship, citizenship of another EU country or a non-EU country; denomination; will; net household income; number of telephone numbers at home. Additionally coded: respondent ID; weighting factors; region; federal state; city size (political community size class); level of knowledge survey: total score over the entire objective level of knowledge on organ and tissue donation, knowledge dimension decision and knowledge dimension donation (in points and in categories); cumulative documented decisions in the organ donation card or in the living will (and which ones); cumulated documented and undocumented decisions (and which ones); interview date; interview start; length of the respective question blocks 1 to 6 in seconds; total length of the interview in seconds; interruption of the interview.
Temporal Coverage
  • 2017-11-21 / 2018-02-06
Geographic Coverage
  • Germany (DE)
Sampled Universe
14- to 75-year-old resident population with sufficient knowledge of the German language and landline connection in the household
Sampling
Probability Sample: Multistage Sample
Collection Mode
  • Telephone interview: CATI (Computer Assisted Telephone Interview)
Data and File Information
  • Number of Variables: 752
Note
The survey is designed as a replication study of the surveys conducted in 2010 (ZA6671), 2012 (ZA6672), 2013 (ZA5176), 2014 (ZA6673) and 2016 (ZA6674).
Availability
Delivery
A - Data and documents are released for academic research and teaching.
Rights
All metadata from GESIS DBK are available free of restriction under the Creative Commons CC0 1.0 Universal Public Domain Dedication. However, GESIS requests that you actively acknowledge and give attribution to all metadata sources, such as the data providers and any data aggregators, including GESIS. For further information see https://dbk.gesis.org/dbksearch/guidelines.asp
Alternative Identifiers
  • ZA6707 (Type: ZA-No.)
  • BZgA (Type: FDZ)
Publications
  • Caille-Brillet, A.-L., Zimmering, R., Thaiss, H. M. (2019). Bericht zur Repräsentativstudie 2018 „Wissen, Einstellung und Verhalten der Allgemeinbevölkerung zur Organ- und Gewebespende“. BZgA-Forschungsbericht. Köln: Bundeszentrale für gesundheitliche Aufklärung.

Update Metadata: 2020-02-13 | Issue Number: 1 | Registration Date: 2020-02-13

Caille-Brillet, Anne-Laure; Thaiss, Heidrun M.; Zimmering, Rebecca (2019): Wissen, Einstellung und Verhalten der Allgemeinbevölkerung zur Organ- und Gewebespende 2018. Version: 1.0.0. GESIS Datenarchiv. Dataset. https://doi.org/10.4232/1.13357