My da|ra Login

Detailed view

metadata language: English

Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997

Version
v2
Resource Type
Dataset : administrative records data, clinical data, survey data
Creator
  • Knaus, William
  • Lynn, Joanne
Other Title
  • Version 2 (Subtitle)
Publication Date
2001-02-01
Publication Place
Ann Arbor, Michigan
Publisher
  • Inter-University Consortium for Political and Social Research
Funding Reference
  • Robert Wood Johnson Foundation
Language
English
Free Keywords
Schema: ICPSR
attitudes toward death; decision making; dying; informed consent; intervention; intervention strategies; patient care; right to die; terminal care; terminal illnesses; treatment
Description
  • Abstract

    The objective of the SUPPORT and HELP projects was to improve decision-making in order to address the growing national concern over the loss of control that patients have near the end of life and to reduce the frequency of a mechanical, painful, and prolonged process of dying. SUPPORT comprised a two-year prospective observational study (Phase I) followed by a two-year controlled clinical trial (Phase II). Phase I of SUPPORT collected data from patients accessioned during 1989-1991 to characterize the care, treatment preferences, and patterns of decision-making among critically ill patients. It also served as a preliminary step for devising an intervention strategy for improving critically-ill patients' care and for the construction of statistical models for predicting patient prognosis and functional status. An intervention was implemented in Phase II of SUPPORT, which accessioned patients during 1992-1994. The Phase II intervention provided physicians with accurate predictive information on future functional ability, survival probability to six months, and patients' preferences for end-of-life care. Additionally, a skilled nurse was provided as part of the intervention to elicit patient preferences, provide prognoses, enhance understanding, enable palliative care, and facilitate advance planning. The intervention was expected to increase communication, resulting in earlier decisions to have orders against resuscitation, decrease time that patients spent in undesirable states (e.g., in the Intensive Care Unit, on a ventilator, and in a coma), increase physician understanding of patients' preferences for care, decrease patient pain, and decrease hospital resource use. Data collection in both phases of SUPPORT consisted of questionnaires administered to patients, their surrogates, and physicians, plus chart reviews for abstracting clinical, treatment, and decision information. Phase II also collected information regarding the implementation of the intervention, such as patient-specific logs maintained by nurses assigned to patients as part of the intervention. SUPPORT patients were followed for six months after inclusion in the study. Those who did not die within six months or were lost to follow-up were matched against the National Death Index to identify deaths through 1997. The HELP study was conducted in 1993 concomitantly with Phase II of SUPPORT and collected data to characterize the care, treatment preferences, and patterns of decision-making among hospitalized patients who were at least 80 years old. HELP data were also intended for use in adapting existing mortality and functional status models of elderly hospitalized patients. Data collection methods of HELP were essentially the same as those of SUPPORT. HELP patients were followed for 12 months after inclusion in the study. Patients who did not die within one year or were lost to follow-up were matched against the National Death Index to identify deaths through 1997.
  • Abstract

    Datasets:

    • DS0: Study-Level Files
    • DS1: Physiologic Measurements Data, SUPPORT Phase I
    • DS2: Patient Symptoms Data, SUPPORT Phase I
    • DS3: Summary Data, SUPPORT Phase I
    • DS4: Physiologic Measurements Data, SUPPORT Phase II
    • DS5: Patient Symptoms Data, SUPPORT Phase II
    • DS6: Summary Data, SUPPORT Phase II
    • DS7: Physiologic Measurements Data, HELP
    • DS8: Summary Data, HELP
    • DS9: Physiology Data, SUPPORT Phases I and II and HELP
    • DS10: Key Common Analytical Variables, SUPPORT Phases I and II and HELP
    • DS11: SAS Transport File for Parts 1, 2 and 3
    • DS12: SAS Transport File for Parts 4, 5, and 6
    • DS13: SAS Transport File for Parts 7 and 8
    • DS14: SAS Transport File for Parts 9 and 10
    • DS15: SAS Transport File for Input Control Datasets
    • DS17: Input Forms and Questionnaires for Phase I of SUPPORT Study
    • DS18: Input Forms and Questionnaires for Phase II of SUPPORT and HELP Studies
Temporal Coverage
  • Time period: 1989--1997
  • 1989 / 1997
  • Collection date: 1989--1997
  • 1989 / 1997
Geographic Coverage
  • United States
Sampled Universe
SUPPORT: Critically ill patients admitted to United States hospitals with advanced stages of serious illness. HELP: Patients 80 years of age or older admitted to United States hospitals.
Sampling
SUPPORT: All patients in five United States medical centers who met inclusion and exclusion criteria for nine disease categories: acute respiratory failure, chronic obstructive pulmonary disease, congestive heart failure, liver disease, coma, colon cancer, lung cancer, multiple organ system failure with malignancy, and multiple organ system failure with sepsis. Phase I of SUPPORT accessioned 4,301 patients from June 12, 1989, through June 11, 1991, and in Phase II, 4,804 patients were accessioned from January 7, 1992, through January 24, 1994. HELP: A random sample of 1,176 patients at least 80 years old who were admitted to four United States hospitals from January 21, 1993, through November 21, 1993. Patients meeting the HELP age criterion were excluded if they were admitted electively for surgery or invasive radiographic procedures, were not English-speaking, were admitted for trauma except falls, were admitted to hospice care, were foreign nationals whose purpose for entry in the United States was medical treatment or who became ill while visiting the United States, had an AIDS diagnosis, had a planned discharge of less than 72 hours, transferred from another hospital to a nonintensive unit, were admitted to psychiatry, or were discharged or died within 48 hours of admission. All patients admitted into SUPPORT were automatically screened for the HELP project. As a result of this screening, 90 SUPPORT patients were enrolled in HELP as well as SUPPORT, yielding a total of 1,266 HELP patients.
Note
2020-02-20 Online variable search capabilities have been added for this study.2006-01-12 All files were removed from dataset 16 and flagged as study-level files, so that they will accompany all downloads. Funding institution(s): Robert Wood Johnson Foundation (23715, 20856).
Availability
Delivery
One or more files in this study are not available for download due to special restrictions; consult the study documentation to learn more on how to obtain the data.
Alternative Identifiers
  • 2957 (Type: ICPSR Study Number)
Relations
  • Is new version of
    DOI: 10.3886/ICPSR02957.v1
Publications
  • Ramsahai, Roland R., Grieve, Richard, Sekhon, Jasjeet S.. Extending iterative matching methods: An approach to improving covariate balance that allows prioritisation. Health Services and Outcomes Research Methodology.11, (3-4), 95-114.2011.
    • ID: 10.1007/s10742-011-0075-5 (DOI)
  • Cohen-Mansfield, Jiska, Lipson, Steven. Which advance directive matters? An analysis of end-of-life decisions made in nursing homes. Research on Aging.30, (1), 74-92.2008.
    • ID: 10.1177/0164027507307925 (DOI)
  • Collins, Lauren G., Parks, Susan M., Winter, Laraine. The state of advance care planning: One decade after SUPPORT. American Journal of Hospice and Palliative Medicine.23, (5), 378-384.2006.
    • ID: 10.1177/1049909106292171 (DOI)
  • Landon, Bruce E., Reschovsky, James D., Pham, Hoangmai H., Blumenthal, David. Leaving medicine: The consequences of physician dissatisfaction. Medical Care.44, (3), 234-242.2006.
    • ID: 10.1097/01.mlr.0000199848.17133.9b (DOI)
  • Lynn, Joanne. Living long in fragile health: The new demographics shape end of life care. Hastings Center Report.35, (6), s14-s18.2005.
    • ID: 10.1353/hcr.2005.0096 (DOI)
  • Burton, Elizabeth C, Phillips, Russell S, Covinsky, Kenneth E, Sands, Laura P, et al. The relation of autopsy rate to physicians' beliefs and recommendations regarding autopsy. American Journal of Medicine.117, (4), 255-261.2004.
    • ID: 10.1016/j.amjmed.2004.01.028 (DOI)
  • Garland, Allen, Dawson, Neal V., Altmann, Irene, Thomas, Charles L., Phillips, Russell S., Tsevat, Joel, Desbiens, Norman A., Bellamy, Paul E., Knaus, William A., Connors, Alfred F., Jr.. Outcomes up to 5 years after severe, acute respiratory failure. Chest.126, (6), 1897-1904.2004.
    • ID: 10.1378/chest.126.6.1897 (DOI)
  • Rose, Julia H., O'Toole, Elizabeth E., Dawson, Neal V., Lawrence, Renee, Gurley, Diana. Perspectives, preferences, care practices, and outcomes among older and middle-aged patients with late-stage cancer. Journal of Clinical Oncology.22, (24), 4907-4917.2004.
    • ID: 10.1200/JCO.2004.06.050 (DOI)
  • Mcdonald, Deborah Dillon, Deloge, Jo-Ann, Joslin, Nicole, Petow, Wendy A., Severson, Judith S., Votino, Roberta, Shea, Michael D., Drenga, Jessica M. L., Brennan, Mary T., Moran, Andrea B., Del Signore, Enrico. Communicating end-of-life preferences. Western Journal of Nursing Research.25, (6), 652-666.2003.
    • ID: 10.1177/0193945903254062 (DOI)
  • O'Donnell, Heather, Phillips, Russell S., Wenger, Neil, Teno, Joan, Davis, Roger B., Hamel, Mary B.. Preferences for cardiopulmonary resuscitation among patients 80 years or older: The views of patients and their physicians. Journal of the American Medical Directors Association.4, (3), 139-144.2003.
    • ID: 10.1016/S1525-8610(04)70323-0 (DOI)
  • Hamel, Mary Beth, Phillips, Russell S., Teno, Joan M., Davis, Roger B., Goldman Lee, Lynn, Joanne, Desbiens, Norman A., Connors, Alfred F., Jr., Tsevat, Joel. Cost effectiveness of aggressive care for patients with nontraumatic coma [comment]. Critical Care Medicine.30, (6), 1191-1196.2002.
    • ID: 10.1097/00003246-200206000-00002 (DOI)
  • Wu, Albert W., Young, Y., Dawson, N.V., Brant, L., Galanos, Anthony N., Broste, S., Landefeld, S.C., Harrell, F.E., Lynn, Joanne. Estimates of future physical functioning by seriously ill hospitalized patients, their families, and their physicians. Journal of the American Geriatrics Society.50, (2), 230-237.2002.
    • ID: 10.1046/j.1532-5415.2002.50053.x (DOI)
  • Coppolino, Michael, Ackerson, Lynn. Do Surrogate Decision Makers Provide Accurate Consent for Intensive Care Research?. Chest.119, (2), 603-612.2001.
    • ID: 10.1378/chest.119.2.603 (DOI)
  • Dendaas, N., Pellino, T.A., Roberts, K.F., Cleary, J.. Responding to SUPPORT: An academic medical center examines its end-of-life care practices. Journal of Pain and Symptom Management.21, (2), 121-128.2001.
    • ID: 10.1016/S0885-3924(00)00257-8 (DOI)
  • Goldblatt, David. A Messy Necessary End: Health Care Proxies Need Our Support. Neurology.56, (2), 148-152.2001.
    • ID: 10.1212/WNL.56.2.148 (DOI)
  • Hamel, Mary Beth, Phillips, Russell S., Davis, Roger B., Teno, Joan M., Desbiens, Norman A., Lynn, Joanne, Tsevat, Joel. Are aggressive treatment strategies less cost-effective for older patients? The case of ventilator support and aggressive care for patients with acute respiratory failure. Journal of the American Geriatrics Society.49, (4), 382-390.2001.
    • ID: 10.1046/j.1532-5415.2001.49080.x (DOI)
  • Murphy, P.A., Price, D.M., Stevens, M., Lynn, Joanne, Kathryn, E.. Under the radar: Contributions of the SUPPORT nurses. Nursing Outlook.49, (5), 238-242.2001.
    • ID: 10.1067/mno.2001.115444 (DOI)
  • Alzola, Carlos, Lynn, Joanne, Wagner, Douglas, Wu, Albert W.. Length of Stay and Therapeutic Intervention Allow Estimation of In-Hospital Resource Use Independent of Site and Inflation. Journal of the American Geriatrics Society.48, (5S), S162-S167.2000.
  • Auerbach, Andrew D., Hamel, Mary Beth, Califf, Robert M., Davis, Roger B., Wenger, Neil S., Desbiens, Norman A., Goldman, Lee, Vidaillet, Humberto, Connors, Alfred F., Jr., Lynn, Joanne, Dawson, Neal V., Phillips, Russell S.. Patient Characteristics Associated with Care by a Cardiologist Among Adults Hospitalized with Severe Congestive Heart Failure. Journal of the American College of Cardiology.36, (7), 2119-2125.2000.
    • ID: 10.1016/S0735-1097(00)01005-6 (DOI)
  • Auerbach, Andrew D., Hamel, Mary Beth, Davis, Roger B., Connors, Alfred F., Jr., Regueiro, Carol, Desbiens, Norman A., Goldman, Lee, Califf, Robert M., Dawson, Neal V., Wenger, Neil S. Vidaillet, Humberto, Phillips, Russell S.. Resource Use and Survival of Patients Hospitalized with Congestive Heart Failure: Differences in Care by Specialty of the Attending Physician. Annals of Internal Medicine.132, (3), 191-200.2000.
  • Baker, Rose, Wu, Albert W., Teno, Joan M., Kreling, Barbara, Damiano, Ann M., Rubin, Haya R., Roach, Mary J., Wenger, Neil S., Phillips, Russell S., Desbiens, Norman A., Connors, Alfred F., Jr., Knaus, William, Lynn, Joanne. Family Satisfaction with End-of-Life Care in Seriously Ill Hospitalized Adults. Journal of the American Geriatrics Society.48, (5S), S61-S69.2000.
  • Borum, Marie L., Lynn, Joanne, Zhong, Zhenshao. Blood Transfusion Administration in Seriously Ill Patients: An Evaluation of SUPPORT Data. Journal of the American Geriatrics Society.48, (5S), S39-S43.2000.
  • Borum, Marie L., Lynn, Joanne, Zhong, Zhenshao. The effects of patient race on outcomes in seriously ill patients in SUPPORT: An overview of economic impact, medical intervention, and end-of-life decisions. Journal of the American Geriatrics Society.48, (5S), S194-S198.2000.
  • Borum, Marie L., Lynn, Joanne, Zhong, Zhenshao, Roth, Katalin, Connors, Alfred F., Jr., Desbiens, Norman A., Phillips, Russell S., Dawson, Neal V.. The Effect of Nutritional Supplementation on Survival in Seriously Ill Hospitalized Adults: An Evaluation of the SUPPORT Data. Journal of the American Geriatrics Society.48, (5S), S33-S38.2000.
  • Castle, Jane Elizabeth. Patients with advanced heart failure: A description of the disease trajectory in the Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment in critically ill adults. Dissertation, Boston College. 2000.
  • Claessens, Michael T., Lynn, Joanne, Zhong, Zhenshao, Desbiens, Norman A., Phillips, Russell S., Wu, Albert W., Harrell, Frank E., Jr., Connors, Alfred F., Jr.. Dying with Lung Cancer or Chronic Obstructive Pulmonary Disease: Insights from SUPPORT. Journal of the American Geriatrics Society.48, (5S), S146-S153.2000.
  • Covinsky, Kenneth E, Fuller, Jon D, Yaffe, Kristine, Johnston, C Bree, et al. Communication and decision-making in seriously ill patients: Findings of the SUPPORT project. Journal of the American Geriatrics Society.48, (5 supp), S187-S193.2000.
  • Desbiens, Norman A., Mueller-Rizner, Nancy. How Well do Surrogates Assess the Pain of Seriously Ill Patients?. Critical Care Medicine.28, (5), 1347-1352.2000.
    • ID: 10.1097/00003246-200005000-00015 (DOI)
  • Desbiens, Norman A., Wu, Albert W.. Pain and Suffering in Seriously Ill Hospitalized Patients. Journal of the American Geriatrics Society.48, (5S), S183-S186.2000.
  • Devlin, John. Pain Assessment in the Seriously Ill Patient: Can Family Members Play a Role?. Critical Care Medicine.28, (5), 1660-1661.2000.
    • ID: 10.1097/00003246-200005000-00074 (DOI)
  • Freeborne, Nancy. The collected reports from SUPPORT and HELP: An annotated bibliography of manuscripts in print as of December 31, 1999, and SUPPORT prognostic formulas. Journal of the American Geriatrics Society.48, (5 supp), S222-S233.2000.
  • Freeborne, Nancy, Lynn, Joanne, Desbiens, Norman A.. Insights About Dying from the SUPPORT Project. Journal of the American Geriatrics Society.48, (5S), S199-S205.2000.
  • Friesinger, Gottlieb C., II, Butler, Javed. End-of-Life Care for Elderly Patients with Heart Failure. Clinics in Geriatric Medicine.16, (3), 663-675.2000.
    • ID: 10.1016/S0749-0690(05)70034-3 (DOI)
  • Golin, Carol E., Wenger, Neil S., Liu, Honghu, Dawson, Neal V., Teno, Joan M., Desbiens, Norman A., Lynn, Joanne, Oye, Robert K., Phillips, Russell S.. A Prospective Study of Patient-Physician Communication about Resuscitation. Journal of the American Geriatrics Society.48, (5S), S52-S60.2000.
  • Hamel, Mary Beth, Lynn, Joanne, Teno, Joan M., Covinsky, Kenneth E., Wu, Albert W.. Age-Related Differences in Care Preferences, Treatment Decisions, and Clinical Outcomes of Seriously Ill Hospitalized Adults: Lessons from SUPPORT. Journal of the American Geriatrics Society.48, (5S), S176-S182.2000.
  • Kleinhenz, Mary Ellen, Lewis, Cecilia Younger. Chronic Ventilator Dependence In Elderly Patients. Clinics in Geriatric Medicine.16, (4), 735-755.2000.
    • ID: 10.1016/S0749-0690(05)70041-0 (DOI)
  • Kreling, Barbara, Wu, Albert W., Lynn, Joanne. Survey Methods for Seriously Ill Hospitalized Adults: Practical Lessons from SUPPORT. Journal of the American Geriatrics Society.48, (5S), S168-S175.2000.
  • Leff, Bruce, Kaffenbarger, Kimberly P., Remsburg, Robin. Prevalence, Effectiveness, and Predictors of Planning the Place of Death Among Older Persons Followed in Community-Based Long Term Care. Journal of the American Geriatrics Society.48, (8), 943-948.2000.
  • Levenson, James W., McCarthy, Ellen P., Lynn, Joanne, Davis, Roger B., Phillips, Russell S.. The Last Six Months of Life for Patients with Congestive Heart Failure. Journal of the American Geriatrics Society.48, (5S), S101-S109.2000.
  • Luce, John M.. Another perspective on SUPPORT. American Journal of Medicine.109, (8), 686-687.2000.
    • ID: 10.1016/S0002-9343(00)00620-3 (DOI)
  • Lynn, Joanne, Arkes, Hal R., Stevens, Marguerite, Cohn, Felicia, Koenig, Barbara, Fox, Ellen, Dawson, Neal V., Phillips, Russell S., Hamel, Mary Beth, Tsevat, Joel. Dying With End Stage Liver Disease with Cirrhosis: Insights from SUPPORT. Journal of the American Geriatrics Society.48, (5S), S122-S130.2000.
  • Lynn, Joanne, Arkes, Hal R., Stevens, Marguerite, Cohn, Felicia, Koenig, Barbara, Fox, Ellen, Dawson, Neal V., Phillips, Russell S., Hamel, Mary Beth, Tsevat, Joel. Rethinking Fundamental Assumptions: SUPPORT's Implications for Future Reform. Journal of the American Geriatrics Society.48, (5S), S214-S221.2000.
  • Lynn, Joanne, DeVries, Kier Olsen, Arkes, Hal R., Stevens, Marguerite, Cohn, Felicia, Murphy, Pat, Covinsky, Kenneth E., Hamel, Mary Beth, Dawson, Neal V., Tsevat, Joel. Ineffectiveness of the SUPPORT Intervention: Review of Explanations. Journal of the American Geriatrics Society.48, (5S), S206-S213.2000.
  • Lynn, Joanne, Ely, E. Wesley, Zhong, Zhenshao, McNiff, Kristin Landrum, Dawson, Neal V., Connors, Al, Desbiens, Norman A., Claessens, Michael, McCarthy, Ellen P.. Living and Dying with Chronic Obstructive Pulmonary Disease. Journal of the American Geriatrics Society.48, (5S), S91-S100.2000.
  • McCarthy, Ellen P., Phillips, Russell S., Zhong, Zhenshao, Drews, Reed E., Lynn, Joanne. Dying with Cancer: Patients' Function, Symptoms, and Care Preferences as Death Approaches. Journal of the American Geriatrics Society.48, (5S), S110-S121.2000.
  • Murphy, Patricia, Kreling, Barbara, Kathryn, Erica, Stevens, Marguerite, Lynn, Joanne, Dulac, Jennie. Description of the SUPPORT Intervention: Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Journal of the American Geriatrics Society.48, (5S), S154-S161.2000.
  • Phillips, Russell S., Hamel, Mary Beth, Covinsky, Kenneth E., Lynn, Joanne. Findings from SUPPORT and HELP: An Introduction. Journal of the American Geriatrics Society.48, (5S), S1-S5.2000.
  • Phillips, Russell S., Hamel, Mary Beth, Teno, Joan M., Soukup, J., Lynn, Joanne, Califf, R., Vidaillet, H., Davis, Roger B., Bellamy, P., Goldman, Lee. Patient race and decisions to withhold or withdraw life-sustaining treatments for seriously ill hospitalized adults. American Journal of Medicine.108, (1), 14-19.2000.
    • ID: 10.1016/S0002-9343(99)00312-5 (DOI)
  • Puchalski, Christina M., Zhong, Zhenshao, Jacobs, Michelle M., Fox, Ellen, Lynn, Joanne, Harrold, Joan, Galanos, Anthony, Phillips, Russell S., Califf, Robert M., Teno, Joan M.. Patients who Want Their Family and Physician to Make Resuscitation Decisions for Them: Observations from SUPPORT and HELP. Journal of the American Geriatrics Society.48, (5S), S84-S90.2000.
  • Rose, Julia Hannum, O'Toole, Elizabeth E., Dawson, Neal V., Thomas, Charles, Connors, Alfred F., Jr., Wenger, Neil S., Phillips, Russell S., Hamel, Mary Beth, Cohen, Harvey J., Lynn, Joanne. Age Differences in Care Practices and Outcomes for Hospitalized Patients with Cancer. Journal of the American Geriatrics Society.48, (5S), S25-S32.2000.
  • Rose, Julia Hannum, O'Toole, Elizabeth E., Dawson, Neal V., Thomas, Charles, Connors, Alfred F., Jr., Wenger, Neil S., Phillips, Russell S., Hamel, Mary Beth, Reding, Douglas T., Cohen, Harvey J., Lynn, Joanne. Generalists and Oncologists Show Similar Care Practices and Outcomes for Hospitalized Late-Stage Cancer Patients. Medical Care.38, (11), 1103-1118.2000.
    • ID: 10.1097/00005650-200011000-00005 (DOI)
  • Rosenfeld, Kenneth E.. Measuring Quality in End-of-Life Care. Clinics in Geriatric Medicine.16, (2), 387-400.2000.
    • ID: 10.1016/S0749-0690(05)70063-X (DOI)
  • Roth, K., Lynn, Joanne, Zhong, Zhenshao, Borum, Marie L., Dawson, Neal V.. Dying with end stage liver disease with cirrhosis: Insights from SUPPORT. Journal of the American Geriatrics Society.48, (5 Suppl.), S122-S130.2000.
  • Schein, Roland M. H., Quartin, Andrew A.. Severe Chronic Disease with Acute Physiologic Disturbance: A Role for Intensive Care. Critical Care Medicine.28, (8), 3099-3100.2000.
    • ID: 10.1097/00003246-200008000-00080 (DOI)
  • Somogyi-Zalud, Emese, Zhong, Zhenshao, Lynn, Joanne, Dawson, Neal V., Hamel, Mary Beth, Desbiens, Norman A.. Dying with Acute Respiratory Failure or Multiple Organ System Failure with Sepsis. Journal of the American Geriatrics Society.48, (5S), S140-S145.2000.
  • Steel, Knight, Vitale, Caroline, Whang, Piljoo. Annotated Bibliography of Palliative Care and End of Life Care. Journal of the American Geriatrics Society.48, (3), 325-332.2000.
  • Teno, Joan M., Fisher, Elliot, Hamel, Mary Beth, Wu, Albert W., Murphy, Donald J., Wenger, Neil S., Lynn, Joanne, Harrell, Frank E., Jr.. Decision-Making and Outcomes of Prolonged ICU Stays in Seriously Ill Patients. Journal of the American Geriatrics Society.48, (5S), S70-S74.2000.
  • Wenger, Neil S., Lynn, Joanne, Oye, Robert K., Liu, Honghu, Teno, Joan M., Phillips, Russell S., Desbiens, Norman A., Sehgal, Ashwini, Kussin, Peter S., Taub, Harry, Harrell, Frank, Knaus, William. Withholding versus Withdrawing Life-Sustaining Treatment: Patient Factors and Documentation Associated with Dialysis Decisions. Journal of the American Geriatrics Society.48, (5S), S75-S83.2000.
  • Wenger, Neil S., Phillips, Russell S., Teno, Joan M., Oye, Robert K., Dawson, Neal V., Liu, Honghu, Califf, Robert M., Layde, Peter, Hakim, Rosemarie B., Lynn, Joanne. Physician Understanding of Patient Resuscitation Preferences: Insights and Clinical Implications. Journal of the American Geriatrics Society.48, (5S), S44-S51.2000.
  • Covinsky, Kenneth E., Wu, Albert W., Landefeld, C. Seth, Connors, Alfred F., Jr., Phillips, Russell S., Tsevat, Joel, Dawson, Neal V., Lynn, Joanne, Fortinsky, Richard H.. Health Status Versus Quality of Life in Older Patients: Does the Distinction Matter?. American Journal of Medicine.106, (4), 435-440.1999.
    • ID: 10.1016/S0002-9343(99)00052-2 (DOI)
  • Desbiens, Norman A., Mueller-Rizner, Nancy, Connors, Alfred F., Jr., Wenger, Neil S., Lynn, Joanne. The symptom burden of seriously ill hospitalized patients. Journal of Pain and Symptom Management.17, (4), 248-255.1999.
    • ID: 10.1016/S0885-3924(98)00149-3 (DOI)
  • Fox, Ellen, Landrum-McNiff, Kristen, Zhong, Zhenshao, Dawson, Neal V., Wu, Albert W., Lynn, Joanne. Evaluation of Prognostic Criteria for Determining Hospice Eligibility in Patients with Advanced Lung, Heart, or Liver Disease. JAMA, The Journal of the American Medical Association.282, (17), 1638-1645.1999.
    • ID: 10.1001/jama.282.17.1638 (DOI)
  • Goodlin, Sarah J., Zhong, Zhenshao, Lynn, Joanne, Teno, Joan M., Fago, Julie P., Desbiens, Norman A., Connors, Alfred F., Jr., Wenger, Neil S., Phillips, Russell S.. Factors Associated with Use of Cardiopulmonary Resuscitation in Seriously Ill Hospitalized Adults. JAMA, The Journal of the American Medical Association.282, (24), 2333-2339.1999.
    • ID: 10.1001/jama.282.24.2333 (DOI)
  • Hamel, Mary Beth, Davis, Roger B., Teno, Joan M., Knaus, William A., Lynn, Joanne, Harrell, Frank, Jr., Galanos, Anthony N., Wu, Albert W., Phillips, Russell S.. Older Age, Aggressiveness of Care, and Survival for Seriously Ill Hospitalized Adults. Annals of Internal Medicine.131, (10), 721-728.1999.
  • Hamel, Mary Beth, Teno, Joan M., Goldman, Lee, Lynn, Joanne, Davis, Roger B., Galanos, Anthony N., Desbiens, Norman A., Connors, Alfred F., Jr., Wenger, Neil S. Phillips, Russell S.. Patient Age and Decisions to Withhold Life-Sustaining Treatments from Seriously Ill, Hospitalized Adults. Annals of Internal Medicine.130, (2), 116-125.1999.
  • Hiltunen, Elizabeth F., Medich, Cynthia, Chase, Susan, Peterson, Lynn, Forrow, Lachlan. Family decision making for end-of-life treatment: The SUPPORT nurse narratives. Journal of Clinical Ethics.10, (2), 126-134.1999.
  • Leonard, Colm, Mohindra, Vibha, Ruoss, Stephen, Doyle, Ramona L., Raffin, Thomas A.. European Life-Support Questionnaire. Critical Care Medicine.27, (8), 1686-1687.1999.
    • ID: 10.1097/00003246-199908000-00068 (DOI)
  • Luce, John M.. Physician Variability in Limiting Life-Sustaining Treatment. Critical Care Medicine.27, (10), 2291-2292.1999.
    • ID: 10.1097/00003246-199910000-00041 (DOI)
  • Ott, Christopher. Resuscitation Preferences among Patients with Severe Congestive Heart Failure: Results from the SUPPORT Project. Annals of Emergency Medicine.33, (1), 133-134.1999.
  • Sanders, Arthur B.. Advance Directives. Emergency Medicine Clinics of North America.17, (2), 519-526.1999.
    • ID: 10.1016/S0733-8627(05)70076-6 (DOI)
  • Schroeder, Steven A.. The Legacy of SUPPORT [comment]. Annals of Internal Medicine.131, (10), 780-782.1999.
  • Teno, Joan M.. Lessons learned and not learned from the SUPPORT project. Palliative Medicine.13, 91-93.1999.
  • Vincent, Jean-Louis. Forgoing Life Support in Western European Intensive Care Units: The Results of an Ethical Questionnaire. Critical Care Medicine.27, (8), 1626-1633.1999.
    • ID: 10.1097/00003246-199908000-00042 (DOI)
  • Zhong, Zhenshao, Lynn, Joanne. The Lamont/Christakis article reviewed. Oncology (Huntington).13, (8), 1172-1173.1999.
  • Califf, Robert M., Vidaillet, Humberto, Goldman, Lee. Advanced congestive heart failure: What do patients want?. American Heart Journal.135, (6, Pt. 2), S320-S326.1998.
    • ID: 10.1016/S0002-8703(98)70259-5 (DOI)
  • Danis, Marion. The Promise of Proactie Ethics Consultation. Critical Care Medicine.26, (2), 203-204.1998.
    • ID: 10.1097/00003246-199802000-00005 (DOI)
  • Desbiens, Norman A., Mueller-Rizner, Nancy, Hamel, Mary Beth, Connors, Alfred F., Jr.. Preference for comfort care does not affect the pain experience of seriously ill patients. Journal of Pain and Symptom Management.16, (5), 281-289.1998.
    • ID: 10.1016/S0885-3924(98)00092-X (DOI)
  • Desbiens, Norman A., Wu, Albert W., Yasui, Kutaka, Lynn, Joanne, Alzola, Carlos, Wenger, Neil S., Connors, Alfred F., Jr., Phillips, Russell S., Fulkerson, William. Patient empowerment and feedback did not decrease pain in seriously ill hospitalized adults. Pain.75, (2/3), 237-246.1998.
    • ID: 10.1016/S0304-3959(97)00225-X (DOI)
  • Dowdy, Melvin D., Robertson, Charles, Bander, John A.. A Study of Proactive Ethics Consultation for Critically and Terminally Ill Patients with Extended Lengths of Stay. Critical Care Medicine.26, (2), 252-259.1998.
    • ID: 10.1097/00003246-199802000-00020 (DOI)
  • Haidet, Paul, Hamel, Mary Beth, Davis, Roger B., Wenger, Neil S. Reding, Douglas, Kussin, Peter S., Connors, Alfred F., Jr., Lynn, Joanne, Weeks, Jane C., Phillips, Russell S.. Outcomes, Preferences for Resuscitation, and Physician-Patient Communication Among Patients with Metastatic Colorectal Cancer. American Journal of Medicine.105, (3), 222-229.1998.
    • ID: 10.1016/S0002-9343(98)00242-3 (DOI)
  • Jaagosild, Priit, Dawson, Neal V., Thomas, Charles, Wenger, Neil S., Tsevat, Joel, Knaus, William A., Califf, Robert M., Goldman, Lee, Vidaillet, Humberto, Connors, Alfred F., Jr.. Outcomes of acute exacerbation of severe congestive heart failure: Quality of life, resource use, and survival. Archives of Internal Medicine.158, (10), 1081-1089.1998.
    • ID: 10.1001/archinte.158.10.1081 (DOI)
  • Krumholz, Harlan M., Phillips, Russell S., Hamel, Mary Beth, Teno, Joan M., Bellamy, Paul E., Broste, Steven K., Califf, Robert M., Vidaillet, Humberto, Davis, Roger B., Muhlbaier, Lawrence H., Connors, Alfred F., Jr., Lynn, Joanne, Goldman, Lee. Resuscitation Preferences Among Patients with Severe Congestive Heart Failure: Results from the SUPPORT Project. Circulation.98, (7), 648-655.1998.
    • ID: 10.1161/01.CIR.98.7.648 (DOI)
  • Marbella, Anne M., Desbiens, Norman A., Mueller-Rizner, Nancy, Layde, Peter M.. Surrogates' agreement with patients' resuscitation preferences: Effect of age, relationship, and SUPPORT intervention. Journal of Critical Care.13, (3), 140-145.1998.
    • ID: 10.1016/S0883-9441(98)90018-1 (DOI)
  • Oliverio, Renee, Fraulo, Beth. SUPPORT revisited: The nurse clinician's perspective. Holistic Nursing Practice.13, (1), 1-7.1998.
  • Pritchard, Robert S., Fisher, Elliott S., Teno, Joan M., Sharp, Sandra M., Reding, Douglas J., Knaus, William A., Wennberg, John E., Lynn, Joanne. Influence of Patient Preferences and Local Health System Characteristics on the Place of Death. Journal of the American Geriatrics Society.46, (10), 1242-1250.1998.
  • Randolph, Adrienne G., Guyatt, Gordon H., Carlet, Jean. Understanding Articles Comparing Outcomes Among Intensive Care Units to Rate Quality of Care. Evidence Based Medicine in Critical Care Group. Critical Care Medicine.26, (4), 773-781.1998.
    • ID: 10.1097/00003246-199804000-00032 (DOI)
  • Regueiro, Carol Ronk, Hamel, Mary Beth, Davis, Roger B., Desbiens, Norman A., Connors, Alfred F., Jr., Phillips, Russell S.. A Comparison of Generalist and Pulmonologist Care for Patients Hospitalized with Severe Chronic Obstructive Pulmonary Disease: Resource Intensity, Hospital Costs and Survival. American Journal of Medicine.105, (5), 366-372.1998.
    • ID: 10.1016/S0002-9343(98)00290-3 (DOI)
  • Roach, Mary Joan, Connors, Alfred F., Dawson, Neal V., Wenger, Neil S., Wu, Albert W., Tsevat, Joel, Desbiens, Norman A., Covinsky, Kenneth E., Schubert, Daniel S. P.. Depressed Mood and Survival in Seriously Ill Hospitalized Adults. Archives of Internal Medicine.158, (4), 397-404.1998.
    • ID: 10.1001/archinte.158.4.397 (DOI)
  • Sprung, Charles L., Oppenheim, Arieh. End-of-Life Decisions in Critical Care Medicine: Where are We Headed?. Critical Care Medicine.26, (2), 200-202.1998.
    • ID: 10.1097/00003246-199802000-00004 (DOI)
  • Teno, Joan M., Stevens, Marguerite, Spernak, Stephanie, Lynn, Joanne. Role of written advance directives in decision making: Insights from qualitative and quantitative data. Journal of General Internal Medicine.13, (7), 439-446.1998.
    • ID: 10.1046/j.1525-1497.1998.00132.x (DOI)
  • Tsevat, Joel, Dawson, Neal V., Wu, Albert W., Lynn, Joanne, Soukup, Jane R., Cook, E. Francis, Vidaillet, Humberto, Phillips, Russell S.. Health Values of Hospitalized Patients 80 years or Older. JAMA, The Journal of the American Medical Association.279, (5), 371-375.1998.
    • ID: 10.1001/jama.279.5.371 (DOI)
  • Wanta, Barbara Ann. The relationship between family communication about death and dying, in terms of Bowen's family systems theory, and physicians' knowledge of preference for cardiopulmonary resuscitation. Dissertation, Wilmington College. 1998.
  • Wear, S.M., Milch, R., Weaver, W.L.. Care of dying patients. Surgical Ethics.New York: Oxford University Press. 1998.
  • Weeks, Jane C., Cook, E. Francis, O'Day, Steven J., Peterson, Lynn M., Wenger, Neil S., Reding, Douglas, Harrell, Frank E., Kussin, Peter S., Dawson, Neil V., Connors, Alfred F., Jr., Lynn, Joanne, Phillips, Russell S.. Relationship between Cancer Patients' Predictions of Prognosis and their Treatment Preferences. JAMA, The Journal of the American Medical Association.279, (21), 1709-1714.1998.
    • ID: 10.1001/jama.279.21.1709 (DOI)
  • Zhong, Zhenshao, Lynn, Joanne, Dawson, Neal V., Connors, Alfred F., Jr., Phillips, Russell S.. Physician Experience Caring for Dying Patients and its Relationship to Patient Outcomes. Journal of the American Geriatrics Society.46, (9), 178 -1998.
  • Cooper, Gregory S., Bellamy, Paul, Dawson, Neal V., Desbiens, Norman, Fulkerson, William J., Jr., Goldman, Lee, Quinn, Linda M., Speroff, Theodore, Landefeld, C. Seth. A prognostic model for patients with end-stage liver disease. Gastroenterology.113, (4), 1278-1288.1997.
    • ID: 10.1053/gast.1997.v113.pm9322523 (DOI)
  • Dellinger, R. Phillip, Opal, Steven M., Rotrosen, Daniel, Suffredini, Anthony F., Zimmerman, Janice L.. From the Bench to the Bedside: The Future of Sepsis Research. Executive Summary of an American College of Chest Physicians, National Institute of Allergy and Infectious Disease, and National Heart, Lung, and Blood Institute Workshop. Chest.111, (3), 744-753.1997.
  • Desbiens, Norman A., Mueller-Rizner, Nancy, Connors, Alfred F., Jr., Hamel, Mary Beth, Wenger, Neil S.. Pain in the Oldest-Old During Hospitalization and Up to One Year Later. Journal of the American Geriatrics Society.45, (10), 1167-1172.1997.
  • Desbiens, Norman A., Mueller-Rizner, Nancy, Connors, Alfred F., Jr., Wenger, Neil S.. The Relationship of Nausea and Dyspnea to Pain in Seriously Ill Patients. Pain.71, (2), 149-156.1997.
    • ID: 10.1016/S0304-3959(97)03353-8 (DOI)
  • Desbiens, Norman A., Wu, Albert W., Alzola, Carlos, Mueller-Rizner, Nancy, Wenger, Neil S., Connors, Alfred F., Lynn, Joanne, Phillips, Russell S.. Pain During Hospitalization is Associated with Continued Pain Six Months Later in Survivors of Serious Illness. American Journal of Medicine.102, (3), 269-276.1997.
    • ID: 10.1016/S0002-9343(96)00452-4 (DOI)
  • Fins, J.J.. Advance directives and SUPPORT [comment]. Journal of the American Geriatrics Society.45, (4), 519-520.1997.
  • FitzGerald, John D., Wenger, Neil S., Califf, Robert M., Phillips, Russell S., Desbiens, Norman A., Liu, Honghu, Lynn, Joanne, Wu, Albert W., Connors, Alfred F., Jr., Oye, Robert K.. Functional Status Among Survivors of In-Hospital Cardiopulmonary Resuscitation. Archives of Internal Medicine.157, (1), 72-76.1997.
    • ID: 10.1001/archinte.157.1.72 (DOI)
  • Galanos, Anthony N., Pieper, Carl F., Kussin, Peter S., Winchell, Maria T., Fulkerson, William J., Jr., Harrell, Frank E., Jr., Teno, Joan M., Layde, Peter, Connors, Alfred F., Jr., Phillips, Russell S., Wenger, Neil S.. Relationship of Body Mass Index to Subsequent Mortality among Seriously Ill Hospitalized Patients. Critical Care Medicine.25, (12), 1962-1968.1997.
    • ID: 10.1097/00003246-199712000-00010 (DOI)
  • Hamel, Mary Beth, Phillips, Russell S., Davis, Roger B., Desbiens, Norman A., Connors, Alfred F., Jr., Teno, Joan M., Wenger, Neil S., Lynn, Joanne, Wu, Albert W., Fulkerson, William, Tsevat, Joel. Outcomes and Cost-Effectiveness of Initiating Dialysis and Continuing Aggressive Care in Seriously Ill Hospitalized Adults. Annals of Internal Medicine.127, (3), 195-202.1997.
  • Hansen-Flaschen, John. Advanced lung disease. Palliation and terminal care. Clinics in Chest Medicine.18, (3), 645-655.1997.
    • ID: 10.1016/S0272-5231(05)70407-X (DOI)
  • Hanson, Laura C., Danis, Marion, Garrett, Joanne. What is Wrong with End-of-Life Care? Opinions of Bereaved Family Members. Journal of the American Geriatrics Society.45, (11), 1339-1344.1997.
  • Hofmann, Jan C., Wenger, Neil S., Davis, Roger B., Teno, Joan, Connors, Alfred F., Jr., Desbiens, Norman A., Lynn, Joanne, Phillips, Russell S.. Patient Preferences for Communication with Physicians about End-of-Life Decisions. Annals of Internal Medicine.127, (1), 1-12.1997.
  • Lynn, Joanne. Unexpected returns: Insights from SUPPORT. To Improve Health and Health Care, 1997: The Robert Wood Johnson Foundation Anthology.New York: Jossey-Bass. 1997.
  • Lynn, Joanne, Cohn, Felicia, Pickering, John H., Smith, Joel, Stoeppelwerth, Ali M.. American Geriatrics Society on Physician-Assisted Suicide: Brief to the United States Supreme Court. Journal of the American Geriatrics Society.45, (4), 489-499.1997.
  • Lynn, Joanne, Harrell, Frank E., Jr., Cohn, Felicia, Wagner, Doug, Connors, Alfred F., Jr.. Prognoses of seriously ill hospitalized patients on the days before death: Implications for patient care and public policy. New Horizons (Baltimore).5, (1), 56-61.1997.
  • Lynn, Joanne, Teno, Joan M., Phillips, Russell S., Wu, Albert W., Desbiens, Norman A., Harrold, Joan, Claessens, Michael T., Wenger, Neil S. Kreling, Barbara, Connors, Alfred F., Jr.. Perceptions by Family Members of the Dying Experience of Older and Seriously Ill Patients. Annals of Internal Medicine.126, (2), 97-106.1997.
  • Mattimore, Thomas J., Wenger, Neil S., Desbiens, Norman A., Teno, Joan M., Hamel, Mary Beth, Liu, Honghu, Califf, Robert M., Connors, Alfred F., Jr., Lynn, Joanne, Oye, Robert K.. Surrogate and Physician Understanding of Patients' Preferences for Living Permanently in a Nursing Home. Journal of the American Geriatrics Society.45, (7), 818-824.1997.
  • Puopolo, Ann Louise, Kennard, Mary J., Mallatratt, Lee, Follen, Marilyn A., Desbiens, Norman A., Conners, Alfred F., Jr., Califf, Robert M., Walzer, Janet, Soukup, Jane, Davis, Roger B., Phillips, Russell S.. Preferences for Cardiopulmonary Resuscitation. Image--Journal of Nursing Scholarship.29, (3), 229-235.1997.
    • ID: 10.1111/j.1547-5069.1997.tb00987.x (DOI)
  • Rodriguez, Robert M., Wang, N. Ewen, Pearl, Ronald G.. Prediction of Poor Outcome of Intensive Care Unit Patients Admitted from the Emergency Department. Critical Care Medicine.25, (11), 1801-1806.1997.
    • ID: 10.1097/00003246-199711000-00016 (DOI)
  • Teno, Joan M., Licks, Sandra, Lynn, Joanne, Wenger, Neil S., Connors, Alfred F., Jr., Phillips, Russell S., O'Connor, Mary Ann, Murphy, Donald P., Fulkerson, William J., Desbiens, Norman A., Knaus, William A.. Do advance directives provide instructions that direct care?. Journal of the American Geriatrics Society.45, (4), 508-512.1997.
  • Teno, Joan, Lynn, Joanne, Connors, Alfred F., Jr., Wenger, Neil S. Phillips, Russell S., Alzola, Carlos, Murphy, Donald P., Desbiens, Norman A., Knaus, William A.. The Illusion of End-of-Life Resource Savings with Advance Directives. Journal of the American Geriatrics Society.45, (4), 513-518.1997.
  • Teno, Joan, Lynn, Joanne, Wenger, Neil S., Phillips, Russell S., Murphy, Donald P., Connors, Alfred F., Jr., Desbiens, Norman A., Fulkerson, William, Bellamy, Paul E., Knaus, William A.. Advance Directives for Seriously Ill Hospitalized Patients: Effectiveness with the Patient Self-Determination Act and the SUPPORT Intervention. Journal of the American Geriatrics Society.45, (4), 500-507.1997.
  • Wenger, Neil S., Greengold, Nancy L., Oye, Robert K., Kussin, Peter S., Phillips, Russell S., Desbiens, Norman A., Liu, Honghu, Hiatt, Jonathan R., Teno, Joan M., Connors, Alfred F., Jr.. Patients with DNR orders in the operating room: Surgery, resuscitation, and outcomes. Journal of Clinical Ethics.8, (3), 250-257.1997.
  • Wilson, I.B., Green, M.L., Goldman, Lee, Tsevat, Joel, Cook, E.F., Phillips, Russell S.. Is experience a good teacher? How interns and attending physicians understand patients' choices for end-of-life care. Medical Decision Making.17, (2), 217-227.1997.
    • ID: 10.1177/0272989X9701700213 (DOI)
  • Anonymous. The SUPPORT study: Can one die a 'good death' in the hospital?. Journal of Health and Hospital Law.29, (5), 312-314.1996.
  • Connors, Alfred F., Jr., Dawson, Neal V., Thomas, Charles, Harrell, Frank E., Jr., Desbiens, Norman, Fulkerson, William J., Kussin, Peter, Bellamy, Paul, Goldman, Lee, Knaus, William A.. Outcomes following acute exacerbation of severe chronic obstructive lung disease. American Journal of Respiratory and Critical Care Medicine.154, (4, part 1), 959-967.1996.
  • Connors, Alfred F., Jr., Speroff, Theodore, Dawson, Neal V., Thomas, Charles, Harrell, Frank E., Jr., Wagner, Douglas, Desbiens, Norman A., Goldman, Lee, Wu, Albert W., Califf, Robert M., Fulkerson, William J., Jr., Vidaillet, Humberto, Broste, Steve. The Effectiveness Of Right Heart Catheterization in the Initial Care of Critically Ill Patients. JAMA, The Journal of the American Medical Association.276, (11), 889-897.1996.
    • ID: 10.1001/jama.276.11.889 (DOI)
  • Covinsky, Kenneth E., Landefeld, C. Seth, Teno, Joan, Connors, Alfred F., Jr., Dawson, Neal, Youngner, Stuart, Desbiens, Norman A., Lynn, Joanne, Fulkerson, William, Reding, Douglas, Oye, Robert, Phillips, Russell S.. Is Economic Hardship on the Families of the Seriously Ill Associated with Patient and Surrogate Care Preferences?. Archives of Internal Medicine.156, (15), 1737-1741.1996.
    • ID: 10.1001/archinte.156.15.1737 (DOI)
  • Desbiens, Norman A., Wu, Albert W., Broste, Steven K., Wenger, Neil S., Connors, Alfred F., Jr., Lynn, Joanne, Yasui, Yutaka, Phillips, Russell S., Fulkerson, William. Pain and Satisfaction with Pain Control in Seriously Ill Hospitalized Adults: Findings from the SUPPORT Research Investigations. Critical Care Medicine.24, (12), 1952-1961.1996.
    • ID: 10.1097/00003246-199612000-00005 (DOI)
  • Donnelly, William J.. The SUPPORT Project and Improving Care for Seriously Ill Patients [letter]. JAMA, The Journal of the American Medical Association.275, (16), 1228-1228.1996.
    • ID: 10.1001/jama.275.16.1228b (DOI)
  • Frank, Robert R., Campbell, Margaret L.. The SUPPORT Project and Improving Care for Seriously Ill Patients [letter]. JAMA, The Journal of the American Medical Association.275, (16), 1228-1229.1996.
    • ID: 10.1001/jama.1996.03530400015021 (DOI)
  • Hakim, Rosemarie B., Teno, Joan M., Harrell, Frank E., Jr., Knaus, William A., Wenger, Neil S. Phillips, Russell S., Layde, Peter, Califf, Robert M., Connors, Alfred F., Jr., Lynn, Joanne. Factors Associated with Do-Not-Resuscitate Orders: Patients' Preferences, Prognoses, and Physicians' Judgments. Annals of Internal Medicine.125, (4), 275-293.1996.
  • Hamel, Mary Beth, Phillips, Russell S., Teno, Joan M., Lynn, Joanne, Galanos, Anthony N., Davis, Roger B., Connors, Alfred F., Jr., Oye, Robert K., Desbiens, Norman A., Reding, Douglas J., Goldman, Lee. Seriously Ill Hospitalized Adults: Do We Spend Less on Older Patients?. Journal of the American Geriatrics Society.44, (9), 1043-1048.1996.
  • Harrell, Frank E., Jr., Lee, K.L., Mark, D.B.. Multivariable prognostic models: Issues in developing models, evaluating assumptions and adequacy, and measuring and reducing errors. Statistics in Medicine.15, (4), 361-387.1996.
    • ID: 10.1002/(SICI)1097-0258(19960229)15:4<361::AID-SIM168>3.0.CO;2-4 (DOI)
  • Hoyt, John W.. Critical Care in 1996: Doing Too Much? Doing Too Little? Keeping the Patient in Focus During a Time of Smoke and Fire. The Presidential Address from the 25th Educational and Scientific Symposium of the Society of Critical Care Medicine. Critical Care Medicine.24, (5), 890-892.1996.
    • ID: 10.1097/00003246-199605000-00029 (DOI)
  • Kennard, Mary J., Speroff, Theodore, Puopolo, Ann Louise, Follen, Marilyn A., Mallatratt, Lee, Phillips, Russell, Desbiens, Norman, Califf, Robert M., Connors, Alfred F., Jr.. Participation of nurses in decision making for seriously ill adults. Clinical Nursing Research.5, (2), 199-219.1996.
    • ID: 10.1177/105477389600500207 (DOI)
  • Lasch, Kathryn, Carr, Daniel B.. Pain Assessment in Seriously Ill Patients: Its Importance and Need for Technical Improvement. Critical Care Medicine.24, (12), 1943-1944.1996.
    • ID: 10.1097/00003246-199612000-00002 (DOI)
  • Layde, Peter M., Broste, Steven K., Desbiens, Norman A., Follen, Marilyn, Lynn, Joanne, Reding, Douglas, Vidaillet, Humberto. Generalizability of clinical studies conducted at tertiary care medical centers: A population-based analysis. Journal of Clinical Epidemiology.49, (8), 835-844.1996.
    • ID: 10.1016/0895-4356(96)00006-6 (DOI)
  • Lynn, Joanne, Harrell, Frank E., Jr., Chon, Felicia, Hamel, Mary Beth, Dawson, Neal, Wu, Albert W.. Defining the 'terminally ill': Insights from SUPPORT. Duquesne Law Review.35, (1), 311-336.1996.
  • Markson, Lawrence J., Clark, Jack. What SUPPORT really means. Hospital Practice.31, (9), 11-13.1996.
  • Parrillo, Joseph E.. The SUPPORT Project and Improving Care for Seriously Ill Patients [letter]. JAMA, The Journal of the American Medical Association.275, (16), 1229-1229.1996.
    • ID: 10.1001/jama.275.16.1229c (DOI)
  • Phillips, Russell S., Hamel, Mary Beth, Teno, Joan M., Bellamy, Paul, Broste, Steven K., Califf, Robert M., Vidaillet, Humberto, Davis, Roger B., Muhlbaier, Lawrence H., Connors, Alfred F., Jr., Lynne, Joanne, Goldman, Lee. Race, resource use, and survival in seriously ill hospitalized adults. Journal of General Internal Medicine.11, (7), 387-396.1996.
    • ID: 10.1007/BF02600183 (DOI)
  • Phillips, Russell S., Wenger, Neil S., Teno, Joan, Oye, Robert K., Youngner, Stuart, Califf, Robert M., Layde, Peter, Desbiens, Norman A., Connors, Alfred F., Jr., Lynn, Joanne. Choices of seriously ill patients about cardiopulmonary resuscitation: Correlates and outcomes. American Journal of Medicine.100, (2), 128-137.1996.
    • ID: 10.1016/S0002-9343(97)89450-8 (DOI)
  • Prendergast, Thomas J.. The SUPPORT Project and Improving Care for Seriously Ill Patients [letter]. JAMA, The Journal of the American Medical Association.275, (16), 1227-1227.1996.
    • ID: 10.1001/jama.275.16.1227b (DOI)
  • Rosenfeld, Kenneth E., Wenger, Neil S., Phillips, Russell S., Connors, Alfred F., Dawson, Neal V., Layde, Peter, Califf, Robert M., Liu, Honghu, Lynn, Joanne, Oye, Robert K.. Factors Associated with Change in Resuscitation Preference of Seriously Ill Patients. Archives of Internal Medicine.156, (14), 1558-1564.1996.
    • ID: 10.1001/archinte.156.14.1558 (DOI)
  • Sabatino, Charles P.. SUPPORT project: Lessons in changing the culture of dying. Perspective on Aging.25, (2), 23-24.1996.
  • Sachs, Greg A.. The SUPPORT Project and Improving Care for Seriously Ill Patients [letter]. JAMA, The Journal of the American Medical Association.275, (16), 1229-1229.1996.
    • ID: 10.1001/jama.275.16.1229b (DOI)
  • Solomon, Mildred Z., Jennings, Bruce, Dickey, Nancy, Pittman, Mary, Orentlicher, David, Lombard, John J. Jr. The SUPPORT Project and Improving Care for Seriously Ill Patients [letter]. JAMA, The Journal of the American Medical Association.275, (16), 1229-1230.1996.
    • ID: 10.1001/jama.1996.03530400015024 (DOI)
  • Tonelli, Mark R.. Pulling the Plug on Living Wills. A Critical Analysis of Advance Directives. Chest.110, (3), 816-822.1996.
    • ID: 10.1378/chest.110.3.816 (DOI)
  • Wenger, Neil S., Oye, Robert K., Desbiens, Norman A., Phillips, Russell S., Teno, Joan M., Connors, Alfred F., Jr., Liu, Honghu, Zemsky, Monika F., Kussin, Peter S.. The stability of DNR orders on hospital readmission. Journal of Clinical Ethics.7, (1), 48-54.1996.
  • Annas, George J.. How we lie. Hastings Center Report.25, (6), S12-S14.1995.
  • Anonymous. Using SUPPORT (Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment) to GUIDe (Guidelines for Use of Intensive Care in Denver) our fix on futility. Hospital Ethics.11, (1), 1-5.1995.
  • Arkes, Hal R., Dawson, Neal V., Speroff, Theodore, Harrell, Frank E., Jr., Alzola, Carlos, Phillips, Russell, Desbiens, Norman, Oye, Robert K., Knaus, William, Connors, Alfred F., Jr.. The covariance decomposition of the probability score and its use in evaluating prognostic estimates. Medical Decision Making.15, (2), 120-131.1995.
  • Berwick, Donald M.. The SUPPORT project: Lessons for action. Hastings Center Report.25, (6), S21-S22.1995.
  • Brody, Howard. The best system in the world. Hastings Center Report.25, (6), S18-S21.1995.
  • Brown, S.D., Gutierrez, Guillermo. In SUPPORT of experience and judgment. Lancet.346, (8973), 456-457.1995.
    • ID: 10.1016/S0140-6736(95)91317-3 (DOI)
  • Callahan, Daniel. Once again, reality: Now where do we go?. Hastings Center Report.25, (6), S33-S36.1995.
  • Connors, Alfred F., Jr., Dawson, Neal V., Desbiens, Norman A., Fulkerson, William J., Jr., Goldman, Lee, Knaus, William A., Lynn, Joanne, Oye, Robert K.. A Controlled Trial to Improve Care for Seriously Ill Hospitalized Patients: The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT). JAMA, The Journal of the American Medical Association.274, (20), 1591-1598.1995.
  • Emanuel, Linda L.. Structured deliberation to improve decisionmaking for the seriously ill. Hastings Center Report.25, (6), S14-S18.1995.
  • Hamel, Mary Beth, Goldman, Lee, Teno, Joan, Lynn, Joanne, Davis, Roger B., Harrell, Frank E., Jr., Connors, Alfred F., Jr., Califf, Robert M., Kussin, Peter S., Bellamy, Paul E., Vidaillet, Humberto, Phillips, Russell S.. Identification of Comatose Patients at High Risk for Death or Severe Disability. JAMA, The Journal of the American Medical Association.273, (23), 1842-1848.1995.
    • ID: 10.1001/jama.273.23.1842 (DOI)
  • Hardwig, John. SUPPORT and the invisible family. Hastings Center Report.25, (6), S23-S25.1995.
  • Hiltunen, Elizabeth F., Puopolo, Ann Louise, Marks, Geogianna K., Marsden, Celine, Kennard, Mary J., Follen, Marilyn A., Phillips, Russell S.. The nurse's role in end-of-life treatment discussions: Preliminary report from the SUPPORT project. Journal of Cardiovascular Nursing.9, (3), 68-77.1995.
  • Knaus, William A., Harrell, Frank E., Jr., Lynn, Joanne, Goldman, Lee, Phillips, Russell S., Connors, Alfred F., Jr., Dawson, Neal V., Fulkerson, William J., Jr., Califf, Robert M., Desbiens, Norman A., Layde, Peter, Oye, Robert K., et al. The SUPPORT Prognostic Model: Objective Estimates of Survival for Seriously Ill Hospitalized Adults. Annals of Internal Medicine.122, (3), 191-203.1995.
  • Layde, Peter M., Beam, Craig A., Broste, Steven K., Connors, Alfred F., Jr., Desbiens, Norman A., Lynn, Joanne, Phillips, Russell S., Reding, Douglas, Teno, Joan, Vidaillet, Humberto, Wenger, Neil. Surrogates' Predictions of Seriously Ill Patients' Resuscitation Preferences. Archives of Family Medicine.4, (6), 518-523.1995.
    • ID: 10.1001/archfami.4.6.518 (DOI)
  • Lo, Bernard. End-of-life care after termination of SUPPORT. Hastings Center Report.25, (6), S6-S8.1995.
  • Lynn, Joanne, Teno, Joan M., Harrell, Frank E., Jr.. Accurate prognostications of death: Opportunities and challenges for clinicians. Western Journal of Medicine.163, (3), 250-257.1995.
  • Marshall, Patricia A.. The SUPPORT study: Who's talking?. Hastings Center Report.25, (6), S9-S11.1995.
  • Moskowitz, Ellen H., Nelson, James Lindemann. The best laid plans. Hastings Center Report.25, (6), S3-S5.1995.
  • Schneider, Carl E.. From consumer choice to consumer welfare. Hastings Center Report.25, (6), S25-S28.1995.
  • Solomon, Mildred Z.. The enormity of the task: SUPPORT and changing practice. Hastings Center Report.25, (6), S28-S31.1995.
  • Teno, Joan M., Hakim, Rosemarie B., Knaus, William A., Wenger, Neil S., Phillips, Russell S., Wu, Albert W., Layde, Peter, Connors, Alfred F., Jr., Dawson, Neil V., Lynne, Joanne. Preferences for cardiopulmonary resuscitation: Physician-patient agreement and hospital resource use. Journal of General Internal Medicine.10, (4), 179-186.1995.
    • ID: 10.1007/BF02600252 (DOI)
  • Tsevat, Joel, Cook, E. Francis, Green, Michael L., Matchar, David B., Dawson, Neal V., Broste, Steven K., Wu, Albert W., Phillips, Russell S., Oye, Robert K., Goldman, Lee. Health Values of the Seriously Ill. Annals of Internal Medicine.122, (7), 514-520.1995.
  • Wu, Albert W., Damiano, Anne M., Lynn, Joanne, Alzola, Carlos, Teno, Joan, Landefeld, C. Seth, Desbiens, Norman A., Tsevat, Joel, Mayer-Oakes, Alison, Harrell, Frank E., Jr., Knaus, William A.. Predicting Future Functional Status for Seriously Ill Hospitalized Adults: The SUPPORT Model. Annals of Internal Medicine.122, (5), 342-350.1995.
  • Covinsky, Kenneth E., Goldman, Lee, Cook, E. Francis, Oye, Robert, Desbiens, Norman A., Reding, Douglas, Fulkerson, William, Connors, Alfred F., Jr., Lynn, Joanne, Phillips, Russell S.. The Impact of Serious Illness on Patients' Families. JAMA, The Journal of the American Medical Association.272, (23), 1839-1844.1994.
    • ID: 10.1001/jama.272.23.1839 (DOI)
  • Lynn, Joanne, Johnson, Jean, Levine, Robert J.. The ethical conduct of health services research: A case study of 55 institutions' applications to the SUPPORT project. Clinical Research.48, (1), 3-10.1994.
  • Teno, Joan M., Murphy, D., Lynn, Joanne, Tosteson, A., Desbiens, Norman A., Connors, Alfred F., Jr., Hamel, Mary Beth, Wu, Albert W., Phillips, Russell S., Wenger, Neil S., Harrell, Frank E., Jr., Knaus, W.A.. Prognosis-based futility guidelines: Does anyone win?. Journal of the American Geriatrics Society.42, (11), 1202-1207.1994.
  • Teno, Joan, Lynn, Joanne, Phillips, Russell S., Murphy, Donald, Youngner, Stuart J., Bellamy, Paul. Do formal advance directives affect resuscitation decisions and the use of resources for seriously ill patients?. Journal of Clinical Ethics.5, (1), 23-30.1994.
  • Wenger, Neil S., Oye, Robert K., Bellamy, Paul E., Lynn, Joanne, Phillips, Russell S., Desbiens, Norman A., Kussin, Peter, Youngner, Stuart J.. Prior Capacity of Patients Lacking Decision Making Ability Early in Hospitalization: Implications for Advance Directive Administration. Journal of General Internal Medicine.9, (10), 537-543.1994.
    • ID: 10.1007/BF02599276 (DOI)
  • Anonymous. SUPPORT: Study to understand prognoses and preferences for outcomes and risks of treatments. Study design. Journal of Clinical Epidemiology.43, (Suppl.), 1S-123S.1990.
  • Connors, Alfred F., Jr., Dawson, Neal V., Arkes, Hal R., Roach, Mary Joan. Decision making in SUPPORT: Physician perceptions and preferences. Journal of Clinical Epidemiology.43, (Suppl), 59S-62S.1990.
    • ID: 10.1016/0895-4356(90)90221-A (DOI)
  • Connors, Alfred F., Jr., Dawson, Neal V., Lynn, Joanne. Decision making in SUPPORT: Introduction. Journal of Clinical Epidemiology.43, (Suppl), 47S-50S.1990.
    • ID: 10.1016/0895-4356(90)90218-E (DOI)
  • Coulton, Claudia J.. Decision making in SUPPORT: Patient perceptions and preferences. Journal of Clinical Epidemiology.43, (Suppl), 51S-54S.1990.
    • ID: 10.1016/0895-4356(90)90219-F (DOI)
  • Dawson, Neal V., Connors, Alfred F., Jr.. Decision making in SUPPORT: Physician characteristics. Journal of Clinical Epidemiology.43, (Suppl), 63S-66S.1990.
    • ID: 10.1016/0895-4356(90)90222-B (DOI)
  • Dawson, Neal V., Youngner, Stuart J., Connors, Afred F.. Phase II: Influencing decision making in SUPPORT. Journal of Clinical Epidemiology.43, (Suppl), 103S-108S.1990.
    • ID: 10.1016/0895-4356(90)90229-I (DOI)
  • Desbiens, Norman A., Broste, Steven K., Folln, Marilyn A., Layde, Peter M.. A population-based study of the prevalence and outcome of serious illnesses in adults. Journal of Clinical Epidemiology.43, (Suppl), 99S-102S.1990.
    • ID: 10.1016/0895-4356(90)90228-H (DOI)
  • Desbiens, Norman A., Broste, Steven K., Layde, Peter M.. Collaborating hospital characteristics and their healthcare and legal environments in SUPPORT. Journal of Clinical Epidemiology.43, (Suppl), 79S-82S.1990.
    • ID: 10.1016/0895-4356(90)90225-E (DOI)
  • Harrell, Frank E., Jr., Marcus, Stephen E., Layde, Peter M., Broste, Steven K., Cook, E. Francis, Wagner, Douglas P., Muhlbaier, Lawrence H., Peck, Steve L.. Statistical methods in SUPPORT. Journal of Clinical Epidemiology.43, (Suppl), 89S-98S.1990.
    • ID: 10.1016/0895-4356(90)90227-G (DOI)
  • Kreling, Barbara, Robinson, DetraK., Bergner, Marilyn. Data collection strategies in SUPPORT. Journal of Clinical Epidemiology.43, (Suppl), 5S-11S.1990.
    • ID: 10.1016/0895-4356(90)90212-8 (DOI)
  • Landerfeld, C. Seth, Phillips, Russell S., Bergner, Marilyn. Patient characteristics in SUPPORT: Functional status. Journal of Clinical Epidemiology.43, (Suppl), 37S-40S.1990.
    • ID: 10.1016/0895-4356(90)90216-C (DOI)
  • Lynn, Joanne, Knauss, William. Background for SUPPORT. Journal of Clinical Epidemiology.43, (Suppl), 1S-4S.1990.
    • ID: 10.1016/0895-4356(90)90211-7 (DOI)
  • Murphy, Donald J., Knaus, William A., Lynn, Joanne. Study population in SUPPORT: Patients (as defined by disease categories and mortality projections), surrogates, and physicians. Journal of Clinical Epidemiology.43, (Suppl), 11S-28S.1990.
    • ID: 10.1016/0895-4356(90)90213-9 (DOI)
  • Oye, Robert K., Landefeld, C. Seth, Jayes, Robert L.. Outcomes in SUPPORT. Journal of Clinical Epidemiology.43, (Suppl), 83S-88S.1990.
    • ID: 10.1016/0895-4356(90)90226-F (DOI)
  • Phillips, Russell S., Goldman, Lee, Bergner, Marilyn. Patient characteristics in SUPPORT: Activity status and cognitive function. Journal of Clinical Epidemiology.43, (Suppl), 33S-36S.1990.
    • ID: 10.1016/0895-4356(90)90215-B (DOI)
  • Phillips, Russell S., Knaus, William A.. Patient characteristics in SUPPORT: Sociodemographics, admission diagnosis, co-morbidities and acute physiology score. Journal of Clinical Epidemiology.43, (Suppl), 29S-32S.1990.
    • ID: 10.1016/0895-4356(90)90214-A (DOI)
  • Phillips, Russell S., Murphy, Donald J., Goldman, Lee, Knaus, William A.. Patient characteristics in SUPPORT: Disease specific clinical data. Journal of Clinical Epidemiology.43, (Suppl), 41S-46S.1990.
    • ID: 10.1016/0895-4356(90)90217-D (DOI)
  • Phillips, Russell S., Rempusheski, Veronica F., Puopolo, Ann Louise, Naccarato, Mary, Mallatratt, Lee. Decision making in SUPPORT: The role of the nurse. Journal of Clinical Epidemiology.43, (Suppl), 55S-59S.1990.
    • ID: 10.1016/0895-4356(90)90220-J (DOI)
  • Tsevat, Joel, Dawson, Neal V., Matchar, David B.. Assessing quality of life and preferences in the seriously ill using utility theory. Journal of Clinical Epidemiology.43, (Suppl), 73S-78S.1990.
    • ID: 10.1016/0895-4356(90)90224-D (DOI)
  • Youngner, Stuart J., Murphy, Donald J., Lynn, Joanne. Decision making in SUPPORT: Sentinel decisions. Journal of Clinical Epidemiology.43, (Suppl), 67S-72S.1990.
    • ID: 10.1016/0895-4356(90)90223-C (DOI)

Update Metadata: 2020-02-20 | Issue Number: 1 | Registration Date: 2020-02-20

Knaus, William; Lynn, Joanne (2001): Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997. Version 2. Version: v2. ICPSR - Interuniversity Consortium for Political and Social Research. Dataset. https://doi.org/10.3886/ICPSR02957.v2