Delphi Panel and Cognitive Response Stakeholder Engaged Survey Development Data

Resource Type
Dataset : survey data, text
  • Goodman, Melody (New York University, School of Global Public Health)
  • Sanders Thompson, Vetta (Washington University in St. Louis)
Publication Date
Funding Reference
  • Patient Centered Outcomes Research Institute
    • Award Number: ME-1511-33027
Free Keywords
Delphi Process; Cognitive Interviews; Engagement Principles; Categories of Community Engagement
  • Abstract

    These data were collected to develop and understand classifications and definitions of community-engaged research that served as the foundation of a measure of stakeholder engaged research. Data on academic and stakeholder perceptions and understandings of classifications and definitions were obtained using Delphi process (N = 19) via online and face-to-face survey and cognitive response interviews (N = 16). Participants responded to survey items for inclusion, exclusion and revision, categories and category definitions for levels of engagement, as well as engagement principles that should be included and their definitions. Cognitive interview responses addressed barriers to item, principle and category comprehension, with opportunities to suggest changes.
  • Weighting

    Not applicable
  • Methods

    Response Rates: Delphi Process: Round 1 - 100%; Round 2,3,5 - 94.7%; Rounds 4 - 84.2%

    Cognitive Response: 100%
Temporal Coverage
  • 2017-06-01 / 2018-08-31
    Time Period: Thu Jun 01 00:00:00 EDT 2017--Fri Aug 31 00:00:00 EDT 2018
  • 2017-07-01 / 2017-07-31
    Collection Date(s): Sat Jul 01 00:00:00 EDT 2017--Mon Jul 31 00:00:00 EDT 2017
  • 2017-10-01 / 2017-11-30
    Collection Date(s): Sun Oct 01 00:00:00 EDT 2017--Thu Nov 30 00:00:00 EST 2017
  • 2018-02-01 / 2018-03-31
    Collection Date(s): Thu Feb 01 00:00:00 EST 2018--Sat Mar 31 00:00:00 EDT 2018
  • 2018-04-01 / 2018-04-30
    Collection Date(s): Sun Apr 01 00:00:00 EDT 2018--Mon Apr 30 00:00:00 EDT 2018
  • 2018-07-01 / 2018-08-31
    Collection Date(s): Sun Jul 01 00:00:00 EDT 2018--Fri Aug 31 00:00:00 EDT 2018
  • 2018-09-01 / 2018-09-30
    Collection Date(s): Sat Sep 01 00:00:00 EDT 2018--Sun Sep 30 00:00:00 EDT 2018
Geographic Coverage
  • Delphi Panel: MO, NY, WA, CA, TN Cognitive Response Interviewees: MO
Sampled Universe
Delphi Process
Panelists were adults (18 and older).
Panelists were stakeholders (providers, patients, advocates, community partners) and academic researchers, with expertise in stakeholder engaged research.

Cognitive Response Interview
Participants were adult (18 years or older).
Participants had experience partnering with researchers on patient- or community-engaged research.

. Smallest Geographic Unit: City
Delphi panelists were recruited by email using a convenience snowball sampling approach. The snowball sampling was based on the networks of the project team members (community-engaged researchers). Members of the panel were selected from the DEAC (n = 2) and the PRAB (n = 3) as key connections to both advisory boards for the project. Panelists were selected from each of the project team members’ institutions: Washington University in St. Louis (four stakeholders, two academics), New York University (two stakeholders), and the University of Washington (two academics). In addition, nationally recognized scholars in community engagement were selected (n = 3) as well as nationally recognized community health stakeholders (n = 2). The list of panelists was shared with the funder to obtain additional recommendations for panelists. No specific panelists were suggested, but the funder requested greater representation from non-academics on the panel. To address this request, an additional three community health stakeholders were recruited to the panel.

Cognitive Response Testing. A purposive sample of 16 was recruited to complete one-on-one cognitive response interviews. Participants were recruited by email from a database of Community Research Fellows Training (CRFT) alumni, who completed the CRFT program in St. Louis, MO and through referral by CRFT alumni. CRFT was established in 2013 and maintains a voluntary database of graduates. At the time of recruitment, the database included updated contact information for 94 (75%) active alumni.

Collection Mode
  • face-to-face interview; web-based survey;

This study is freely available to the general public via web download.
  • Has version
    DOI: 10.3886/E126361V1

Update Metadata: 2020-11-12 | Issue Number: 1 | Registration Date: 2020-11-12